Crohn's Disease Forum » Treatment » Prednisone/Entocort » Up and down taper of prednisone?

05-08-2013, 11:13 PM   #1
Yupitsme's Avatar
Up and down taper of prednisone?

Just wondering if anyone has been prescribed this type of taper? The doc recently recommended I do one day at 5, skip a day, then one day at 1mg, then the next at 5 etc

So my schedule would be as follows: mon-5mg, weds-1mg,fri-5mg,sun-1mg

That just seems odd to me considering that iv always understood the purpose of the taper is so that ur body can produce the cortisol on its own again...seems to me like this would confuse the body

crohns since 96
ileostomy 09
recently diagnosed with pyoderma gangrenosum
tapering prednisone
tried: remicade, asacol,pentasa,entocort,humira and a bunch of other crap

cimzia begins this week
This kinda sux...but i will survive
05-09-2013, 12:27 AM   #2
Jennifer's Avatar
What dose did you start at and how long have you been taking it? This isn't the first time I've heard of tapering doses going up and down (I've never tapered that way but some other members have mentioned it), the skipping a day is new to me though.
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.
05-09-2013, 08:49 AM   #3
Yupitsme's Avatar
I was on 10 for 2 weeks in February. Then when I was diagnoses with pg the derm put me on 50 with a 10 taper daily. Them when I got to 10 she kept me on for another 2 weeks BC she wanted the cimzia to be in my system before she took me off. And now she's given me this weird schedule as of yesterday. So UV heard of the up and down, at least that's comforting I'd never heard of it and was thinking of just going down without going back up a week at a time.
05-09-2013, 11:27 AM   #4
Senior Member
sickofcrohns's Avatar
Join Date: Aug 2012
Location: Toronto, Canada
The up/down thing is crazy. See if you can buy a pill splitter (most pharmacies carry them; they're around $2) and talk to your doctor about dropping from 5 mg to 2.5 mg (half of a 5 mg pill), then 2 mg (two ones), then 1 mg over time.
05-11-2013, 01:36 PM   #5
nogutsnoglory's Avatar
Join Date: Sep 2009
Location: New York

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I did a gradual taper but not the daily alternating. I have done daily alternating on Prozac though.
05-12-2013, 02:21 AM   #6
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alex_chris's Avatar
Join Date: Apr 2013
Location: Frankfurt, Germany
Steroids should remain in the blood on a constant basis. At the low dosage you take, it might not be a problem to go for 5mg, 0mg, 1mg, 0mg, 5mg etc. but then I wonder why you are taking pred at all. Normally you should, as others have said above, go from 5mg per day to 2.5mg per day by just splitting the pill and from there you can go either to 1mg per day or 0.
Crohn's diagnosed in 1999
On Aza from 2003 to 2008 and from 2010 again until Today
60cm of smaller intestine removed in 2003
Vitamin therapy with D3, B6, B12, magnesium, zinc, folic acid for years
Iron therapy with Tardyferron 80mgx2 and Loesferron 80mg for years
Yoga, running, freeletics on the sport side!
05-16-2013, 01:53 PM   #7
tonimacaroni's Avatar
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Hmmm my doc has me skipping as well, 5 mg, 0 mg, 5 mg etc this week, then next week I'm off... so I think skipping is more common than the up and down?
05-22-2013, 09:26 PM   #8
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CrohnsChicago's Avatar
Join Date: Aug 2012
Location: Chicago, Illinois

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I have heard of the skipping as well, but I am more familiar with the up and down (5, 10, 5 , 10) and the jumping doses (taper 10 then taper 5).

have you asked him/her their reasoning behind this taper that you are assigned?
Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

05-22-2013, 09:53 PM   #9
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Location: vancouver, Washington

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im interested as well

Crohn's Disease Forum » Treatment » Prednisone/Entocort » Up and down taper of prednisone?
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