05-18-2013, 11:36 AM   #1
Holding It Together
CarolinAlaska's Avatar
Join Date: Jan 2013
Location: North Central, Illinois

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Viruses and 6MP

My daughter is on 6MP and she seems to have caught her first virus. We've had a cold in the family (her little brother) last week. Now she has a terrible headache, low fever 100 F, and stuffy head. Yesterday she stayed in bed all day and hardly ate anything - resting or sleeping most of the day.

When should I get concerned with a virus when on an immunomodulator? What signs should I be looking for that says she needs to be checked out? What can I expect?
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
05-22-2013, 08:48 PM   #2
Super Moderator
CrohnsChicago's Avatar
Join Date: Aug 2012
Location: Chicago, Illinois

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so sorry your thread has not been responded to yet

I started 6MP 3 months ago and had my first big cold/virus a little over a month ago. I just focused on getting a lot of rest, eating milder foods, drinking more fluids and taking extra vitamin c. I managed to get through with no problems.

At the start of the cold I called my GI and expressed my concerns about my 1st cold and he said it was OK to take cold meds and tylenol if absolutely needed but to still avoid the aspirin and to monitor my symptoms for anything out of the ordinary.

I hope her temperature has gone down and she is starting to feel better by now.
Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)

05-25-2013, 07:47 AM   #3
Senior Member
Join Date: Aug 2010
On AZA/6MP, there is a risk for low WBCs, which is very dangerous. It's a rare side effect, but it does happen. If she gets unexplainably sick, with a high fever, you need to go to the hospital so they can check her white count. Next time you see her doctor, ask him/her to talk to you about when you should go to the hospital when she's sick. It's important and it's annoying that they haven't explained that to you.

Otherwise, I've found that I'm usually sicker for a longer period of time, but it's not too bad. If it's just a regular virus, it might take a little longer to run its course, but she should be fine!

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