Daughter of a wonderful woman with Crohns and Lupus

Hey everyone names Monica. Just recently we found out my mom has Crohn's disease .She's had Lupus for 26yrs now as well. I never really knew how serious Lupus was. Since i'm the baby in the family (26) they really dont tell me much. I knew my mom was sick but never knew how serious it was. Like I said before now my mom has Crohn's disease and I feel like im going crazy! I feel helpless .She just had her 3rd surgery this month today
Thankfully everything came out fine. But doctor says he doesnt know how much more she can take. Because of her Lupus her body is just attacking itself. If there's someone out there with a similar situation or anyone that can help me out. What should I be doing? What should I expect ?. Please, I feel so alone eventhough I have siblings. Would be grateful to know someone with experience.

Welcome to the forum, Monica!

I'm sorry to hear what your mom is dealing with. When was she diagnosed with Crohn's? Were the three surgeries for Crohn's?

I'm going to tag KRT, as I believe they have Crohn's and lupus as well. Maybe they can offer you some advice.

:hug: I hope things get better for you and your family!

I am not sure how lupus and crohns interacts, I'm sorry I can't comment on that. I just wanted to say I'm sorry for everything your mom is going through, and that she is lucky to have a daughter who wants to help her. It's hard when a loved one is sick. This site is a great place to get support.

Hi there,
I have a friend who has had Lupus for years: she has to pace herself so she does not get too tired. Having Crohns on top of that is not easy . I am glad she has got over her surgery but it will take time to get her strength back. She obviously has a very loving daughter and family, and that will help her a lot. I wish her well again soon. You are both in my thoughts and prayers. Let me know how you are. Try not to worry.

SarahBear she was diagnosed on May 13th of this year. I believe in the 1st one the took her appendix out as well as some of her large intestine. The one they did yesterday they put in a bag on her side not sure what its called :/ so the waste goes there since she cant use the bathroom. Thank you for tagging someone for me

Thank you Su-Bee and honey. I'll keep you guys posted.

I am new to the forum. I was diagnoised with Lupus 11 years ago and 3 years ago with Ulcerative Colitis. It has been rough. The sad part is the doctors have to be careful when prescribing medication. Some medications can help the lupus and hurt the colitis or vice versa. I am still having problems.

I'm sorry I'm just now seeing this..I need to check my settings and see why I missed this post..Yes, I have Lupus, Crohns and RA...Plus Sjogrens. It seems that each dr only wants to treat "their" disease..My crohns GI dr won't touch the Lupus symtoms. It's hard at times to say the least. I'm on Plaqunil for the Lupus and Sjogrens and Remicade for the Lupus and Crohns and RA. They are finding out that the Remicade is helping much more than the RA and Crohns. It seems to be helping my Lupus. Again, I'm sorry for not seeing this.

New to the forum, looking for support for family member

My sister-in-law was diagnosed with systemic Lupus in 1999, diagnosed with Crohn's a few months ago and was just hospitalized with her first Crohn's flair, it was not a positive experience for her. She was discharged yesterday with little information about how to manage her Crohn's and currently her GI specialist can't see her til January, and the GI that treated her in the hospital told her he would not accept her as new patient. Needless to say the emotional part of dealing with both ( along with many other health issues) is just if not more difficult than dealing with the disease itself. I'm hoping to find some supports for her because she is really in need of them.

Lupus is a very serious disease and your mother must be a strong woman to roll with all of the punches. I feel so horrible that now crohn's is added into the mix. I'm not familiar with treatments for lupus but some of the clinical trials are looking at ways of "distracting" autoimmune disease. One such trial is whipworm therapy. Again, I'm not sure if it would work on lupus but we are moving in a direction where new meds will trick the body from attacking itself and hopefully that will ultimately mean an end to all these AI diseases. My thoughts are with her and you as you struggle to find a viable option.