Crohn's Disease Forum » Support Forum » Undiagnosed Club » Confused and need help

07-31-2013, 08:13 PM   #1
Join Date: Jul 2013
Confused and need help

Hey everyone.

i will try to keep this as short as possible but i want to share all the info i have.

i am having an issue trying to find out whats wrong with my stomach.

i have always had stomach problems and would get very sick to my stomach often when i was young and spent many hours in the bathroom..i drank a lot of soda back in the day and when i stopped i got much better.

would get small attacks here and there depending if i drank a lot of booze the night before or ate some food that did not agree.. but it was nothing too crazy that would last too long.. maybe an hour or two at the most.

well i am 37 now and in the past 2 years i have been in the hospital 3 times because of stomach issues.

the first time i was at the hospital for a week straight..
i had violent vomiting plus diarrhea and extreme abdominal pain.

could not take in any food or water without it coming back up.

they ran every test on me and they said on paper im one healthy dude so they dont know why i was so sick.. they labeled it as IBS and sent me on my way.

so after that i went hardcore healthy with my food and slowed down on the drinking.

things were going well and then had another attack.. this time only for one day but took 4 shots of morphine to make the pain go away.

and then recently had another attack but only for one day.

i think drinking booze had something to do with all three so i have stopped hard alcohol.. i seem to handle beer.

but now i live in fear of eating or drinking anything cause im afraid of another attack.

do you think i have IBS or Crohns?.. or is there even a difference?

thanks in advance for any help.
07-31-2013, 08:31 PM   #2
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Join Date: Jul 2013
Location: Ontario

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Hi and welcome aboard. I can't say what you have - have you had a colonoscopy? Crohns can take a while to diagnose. There is a big difference between IBD (infammitory bowel disease) and IBS (irritable bowel syndrome). IBD is a very distructive disease that(depending on diagnosis) can effect the digestive system from the mouth to the anus. It causes seriously distructive inflammation that can result in fistulas, abscesses, fissures an a host of other nonintestinal manifestations. Sever p pain and stool filled with blood and mucus. The are other areas on this forum that go into greater detail. I've given the nutshell version. Hope you can get some answers. Have you been referred to a gastroenterologist? May want to start with a referral to a specialist.
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07-31-2013, 08:36 PM   #3
Join Date: Jul 2013
yes they ran the colonoscopy on me.. everything was looking normal like all my other test results...

i have been to a GI doc and within min of explaining to him my symptoms he said right away i have IBS .. no tests from him.. just a brief description of my history.

seems like all their answers were to give me pills to treat attack when it comes but my main concern is prevention of an attack and not treating it when its already hurting me.
07-31-2013, 09:30 PM   #4
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Location: San Antonio, TX

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I hate to say the obvious thing here, but if you have an attack whenever you drink, you may have to give it up. Or just have one, or something, but unfortunatly with digestive diseases there are things you need to give up. I hardly ever drink anymore and when I do its 2 drinks max, I don't eat popcorn which use to be my favorite thing ever!

Also I might get a second opinion on the diagnosis, I'm not a doctor but it sounds like they weren't very into exploring all the options for you. a pill camera for me found my disease, a colonoscopy missed most of it. Also have you had your gall bladder checked?

Best of luck to you, sometimes finding the right diagnosis/treatment is a long and exhausting road- not trying to be discouraging, just saying you are not alone!
07-31-2013, 09:32 PM   #5
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I had a very similar experience to you before my Crohn's diagnosis. Was hospitalized 3 times, twice w/ a bowel obstruction. My first colonoscopy, they didn't find anything. My second one (after the third episode) the were able to diagnose it.

I think there are other tests they can run on you and I hope it doesn't turn out to be IBD.
Crohn's diagnosis Jan '13.
Current meds: Humira, Modafinil, pain meds as needed
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08-01-2013, 03:30 AM   #6
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Hi there, welcome to the forum - and im sorry to hear that you have been having a rough time

I cant really add much more to what everyone else has already advised.
I think a pill cam would be the best way to go.. because a colonoscopy can only see the colon and a tiny peek into the small bowel. Have you had a gastroscopy? (An upper endoscopy which looks down your throat into your stomach). Beccause it can manifest anywhere in the digestive tract.

I understand your frustrations with this.. I have had 2 colonoscopies and one sigmoidoscopy.. each showing something different - sadly no diagnosis though.
Do you have any other symptoms listed in our extra intestinal manifestations section? (Such as arthritis, conjunctivitis)
Also.. may be worthwhile getting your vitamin levels checked - such as B12 and vitamin D - as this can be related to IBD - due to inflammation causing problems absorbing it properly.

Please keep us up to date and let us know how you get on
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08-01-2013, 04:05 AM   #7
Beach bum
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Hello, sorry you are going through all this. When you had a colonoscopy , did they go up into your small intestine, or just large (colon) ?
I experience mostly sickness and stomach pain when I have an attack as my inflammation is small intestine , so my colon looks perfectly healthy.
As someone has suggested , it would be worth trying to get a gall bladder scan - do you have trouble with fatty food ?
Crohn's Diagnosed : 12/07/12
Been on : Budesonide (some relief but not enough).
Switching to : Azathioprine and started Infliximab 14/08/12
Juicing every morning.
Taking vitamin D spray
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And Probio 7 probiotic.

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08-02-2013, 07:32 AM   #8
Little Bear
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Hey, welcome
I'd say, with the NHS, you need to ask to be referred to a gastroenterologist as visits via A&E and being seen on the ward, they are really just concerned with stabilising you and getting you back out of the door. If your GP refers you for this, then the Gastro with you on his or her books will look into sending you for outpatient tests and getting to the bottom of the cause.
I have to say, it does sound a lot like something a friend of mine had back when we were teenagers, which was an allergy to alcohol. Ultimately, we're all just guessing, and only a referral to a gastro and their investigations will tell you what's going on.

Good luck and let us know what happens
Bear x

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