Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Have you been subject to "bottom up" treatment or "top down"?

View Poll Results: Have you been subject to bottom up or top down treatment?
Bottom up! 60 81.08%
Top down! 14 18.92%
Voters: 74. You may not vote on this poll

01-02-2014, 10:11 PM   #31
Senior Member
kiny's Avatar
Join Date: Apr 2011
Neither really, it depended on my disease state. I kind of think that is how it should be. I don't think all patients should be treated equally, each person is different and it should be personalised.
01-05-2014, 10:18 AM   #32
Join Date: Sep 2012

My Support Groups:
I was a mix as well. Initially put on Pentasa which did nothing. A few months later added pred as things were getting worse. Had no response to pred and was still losing weight so skipped over aza and went stright to biologics (Remicade). Did well on Remicade and successfully dropped down to aza.
05-16-2014, 12:53 PM   #33
Senior Member
Join Date: May 2014
Location: us
first gi top down
second gi bottom up

pain wise top down was by far better. but i assume it comes with more possible side affects.
05-16-2014, 01:03 PM   #34
Forum Monitor
SupportiveMom's Avatar
Join Date: Mar 2013
Location: Toronto, Ontario

My Support Groups:
Top down. My kid was so bad we had no time to try the bottom. If it didn't take so long to get into a GI we might have had other options.

Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone ☆
05-16-2014, 01:05 PM   #35
nogutsnoglory's Avatar
Join Date: Sep 2009
Location: New York

My Support Groups:
First gi bottom up and now I just get the big guns of treatment because they feel my disease state is very aggressive and can't be left alone.
07-24-2014, 06:46 PM   #36
Join Date: Nov 2013

My Support Groups:
Technically, my son had the bottom up approach, but it was an extremely rapid progression. He basically spent a summer in and out of the hospital. The first admit they did no real testing and tried to convince everyone it was a virus. The second time, they did the colonoscopy and found the crohn's and started the 6MP. The third admit ( and longest) they discovered the true extent of the crohn's involvement and gave me the wonderful speech that every mother wants to hear "Normally, we would do a resection, but he is too sick with the Crohn's everywhere else to try surgery" Instead they started him on Remicade, which worked great for 13 doses....and then triggered a grand mal seizure.
07-24-2014, 08:20 PM   #37
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

My Support Groups:
I really can't vote because I've been subjected to both. I've been diagnosed with Ulcerative Proctitis which is located in the rectum. So, I mostly take Pentasa pills (top down), but when I flare I also take Canasa Suppositories which are bottom up.

Even when I was first diagnosed in '96 I was given both top down and bottom up at the same time.
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

UP Support Group

Last edited by Cross-stitch gal; 07-24-2014 at 08:55 PM. Reason: added info

Crohn's Disease Forum » General IBD Discussion » Crohn's Polls » Have you been subject to "bottom up" treatment or "top down"?
Thread Tools

All times are GMT -5. The time now is 06:13 AM.
Copyright 2006-2017