Crohn's Disease Forum » Support Forum » Money Issues :/ Questions About Disability

08-22-2013, 04:11 AM   #1
taylorali's Avatar
Join Date: Feb 2013
Location: Yonkers, NY

My Support Groups:
Money Issues :/ Questions About Disability

So I'm sure any of you know that working while sick, is next to impossible.

After my first surgery, I went into remission for 2 years and worked non stop! After my second, I am sick every single day.

I've been on unemployment for almost a year. (In December)

What do you do in order to file for disability? I know when I have my next surgery coming up, I file through the unemployment office, but what happens when unemployment starts cutting how much they pay you? What do I need to do in order to pay bills, buy medicine, etc.?


Crohn's Disease - Diagnosed 1/10

1st Resection-9/10
2nd Resection 1/13
Gallbladder 9/13

Currently: In severe back pain after gallbladder surgery with no answers.

Past Meds: Remicade, Azathioprine, Prednisone, Flagyl, Cipro, 6mp, Entocort, Pentasa, Celebrax, Humira bi-weekly, Ambien, Xanax

Current Meds:
Humira Weekly, Seroquel, Protonix, Klonopin, Lexapro, Iron Supplement, Zantac, Gas-X, Biotin, B12, Culturele, Zofran, Weekly Iron Infusions
08-22-2013, 11:24 AM   #2
Forum Monitor
DJW's Avatar
Join Date: Jul 2013
Location: Ontario

My Support Groups:
Hi Ali. I here you on this issue. As if the disease isn't hard enough. I don't know how it works I don't know how it works in the US but I hope you get some answers soon.
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:

Living in Ontario with no drug benefits?

Trillium Drug Program:

08-25-2013, 02:53 AM   #3
Jennifer's Avatar
Hi taylorali. You can file for SSI and/or SSDI through Social Security Feel free to join us in the Disability/Unemployment Support Group:
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.
08-25-2013, 03:00 AM   #4
nogutsnoglory's Avatar
Join Date: Sep 2009
Location: New York

My Support Groups:
How do you deal with the fact that they ask are you ready, able and willing to work? If you have surgery you aren't able. Do they stop your unemployment?
08-25-2013, 06:23 AM   #5
Super Moderator
afidz's Avatar
Join Date: Jun 2012
Location: Mckinney, Texas

My Support Groups:
They might.
I was on unemployment last year. While I was on unemployment I was babysitting about 15-20 hours a week. I had to stop because of my hernias. Since I stopped all of my funds were put on hold until I had an interview. I told her I had restrictions with weight and thats why it didn't work out but I was still able to look for another babysitting position. Had I said anything else I would of not been able to receive my benefits anymore.
Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Asacol HD

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