Hi all,
I have had Inflammatory Bowel Disease for 20 years along with Ankylosing Spondylitis. I just had an MRI done and it revealed "focal bowel enteritis-crohns". I guess there is a segment of the small bowel in the right midabdomen and right abdominal pelvic junction that is thickened. I have been on humira and enbrel on and off for about 14 years. I have also been on Helminthic Therapy for about 6 months. The humira seems to keep the loose stools and diarrhea in check, it also helps with tongue sores and skin issues BUT, the worst symptom that I suffer with is NOT having an appetite. I usually have the urge to eat for about 3-4 days after my humira injection but then the rest of the time is miserable until the next injection. I am so depressed over this and am so tired of force feeding myself. I usually end up having fruit smoothies or green drinks because I can drink better than eat. Social situations are so awkward because I usually don't have an appetite. It is a horrible way to live and I just don't know what to do anymore. Doctors don't seem to come up with answers. I usually have to ask to be put on something but they don't seem to want to recommend anything. Does anyone out there have any suggestions. I would be so grateful as I just can't continue living this way. I know I can't eat because of all the inflammation and the humira is not keeping it at bay. Thank you so much.
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I have had Inflammatory Bowel Disease for 20 years along with Ankylosing Spondylitis. I just had an MRI done and it revealed "focal bowel enteritis-crohns". I guess there is a segment of the small bowel in the right midabdomen and right abdominal pelvic junction that is thickened. I have been on humira and enbrel on and off for about 14 years. I have also been on Helminthic Therapy for about 6 months. The humira seems to keep the loose stools and diarrhea in check, it also helps with tongue sores and skin issues BUT, the worst symptom that I suffer with is NOT having an appetite. I usually have the urge to eat for about 3-4 days after my humira injection but then the rest of the time is miserable until the next injection. I am so depressed over this and am so tired of force feeding myself. I usually end up having fruit smoothies or green drinks because I can drink better than eat. Social situations are so awkward because I usually don't have an appetite. It is a horrible way to live and I just don't know what to do anymore. Doctors don't seem to come up with answers. I usually have to ask to be put on something but they don't seem to want to recommend anything. Does anyone out there have any suggestions. I would be so grateful as I just can't continue living this way. I know I can't eat because of all the inflammation and the humira is not keeping it at bay. Thank you so much.
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