Crohn's Disease Forum » Extra Intestinal Manifestations » Mouth » Does anyone have braces? Retainer? Fillings?

09-14-2013, 10:21 AM   #1
Join Date: Sep 2013
Does anyone have braces? Retainer? Fillings?

I have been doing some surface reading and would like to get an idea of how many of us who are suffering have had these dental procedures done.

What I have read is the metals cause toxicity which leads to immune disorders.
09-14-2013, 10:34 AM   #2
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My son got braces after his diagnosis. It was about a year later, because I wanted him to be physically stable before we did anything. I did specifically ask his GI if it was okay to go ahead with the braces and he said yes. The Orthodontist also knows about my sons condition and had no issues with giving him braces.

He has had them a year now and his health is even better than when he first had them put on.
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
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09-14-2013, 10:40 AM   #3
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Very interesting. A conflicting story right off the bat. :P

I see he is taking a lot of drugs to combat his ailment and 1 year of braces exposure isn't much. I'd be interested to know his condition in 2-3 years.

That aside I am glad that your son Johnny is feeling healthier.
09-14-2013, 10:45 AM   #4
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He is only on 6mp and vitamins currently.

He has been off of Prednisone for almost 2 years and allopurinol for a year.

He should have his braces off this spring.
09-14-2013, 11:13 AM   #5
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My son is supposed to be getting braces soon but we may go with invisalign due to his age. He has had more fillings since his dx as his teeth have really suffered due to the malabsorption and nutrient/vitamin deficiencies associated with CD. I think we have seen the dentist more often since his dx than I ever did with either of my children before then. My son did have issue with his teeth before dx but the dentist and orthodontist said his discoloration was due to a genetic factor and not really indicative of the health of his teeth.
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
09-14-2013, 11:18 AM   #6
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I had my braces about two years after my crohns diagnosis and I had them removed a couple of months ago after having them on for over 2 years and it has made zero difference to my crohn's. I now have a retainer and still haven't noticed that it has had any affect on my disease. I have had flares whilst I had the braces and managed to get them under control with medication with no more difficulty than when I didn't have braces.
Current meds

Previous meds
Pentasa, Aza, 6mp, Remicade, Humira and Sulfasalazine
09-14-2013, 12:05 PM   #7
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Location: Frankfurt, Germany
Half my teeth are filled with ceramic fillings... I had two gold filings until 16, but they were replaced by ceramics too.
Crohn's diagnosed in 1999
On Aza from 2003 to 2008 and from 2010 again until Today
60cm of smaller intestine removed in 2003
Vitamin therapy with D3, B6, B12, magnesium, zinc, folic acid for years
Iron therapy with Tardyferron 80mgx2 and Loesferron 80mg for years
Yoga, running, freeletics on the sport side!
09-14-2013, 01:54 PM   #8
my little penguin
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My son was 7 at dx so no braces or filling at all.
DS - -Crohn's -Stelara -mtx
09-14-2013, 05:17 PM   #9
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Metal toxicity wouldn't only manifest itself in the intestine, you would have a wide range of symptoms that aren't present in crohn's disease.

What has been suggested is that tiny pieces of metal, called microparticles, would end up penetrating the intestine, get stuck there, and cause non-stop inflammation.

Your body would also develop an allergic reaction to those types of metal after a while. They tested all this in studies.

It's another theory of crohn's disease, that people inhale or ingest tiny microparticles, they get stuck in deeper layers of the intestine and cause inflammation.

It's also suggested because for whatever reason, crohn's disease rises the more developed a nation becomes, with industrialisation comes inhalation and ingestion of microparticles.

It's been suggested in relationship with EN too, EN is extremely low in microparticles. Food you buy from a store isn't "clean", EN on the other hand is quite a lot cleaner, it's abscent of most types of microparticles, because of the way it's made, packaged and used.

09-14-2013, 07:13 PM   #10
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Well not all is lost. I feel like it doesn't contribute anything good but with all the testimonials it isn't causative.
09-14-2013, 09:50 PM   #11
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My daughter had braces prior to her diagnosis at 14 (2006). She has no fillings.

My son was diagnosed at 17 (2010). He has never had braces and has no fillings.

Mum of 2 kids with Crohn's.
09-14-2013, 10:39 PM   #12
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I started getting fillings and other dental work (never had braces) a lot more often after my diagnosis but not before.
Diagnosis: Crohn's in 1991 at age 9
Surgeries: 1 Small Bowel Resection in 1999; Central IV in 1991-92
Meds for CD: 6MP 75mg
Things I take: Tenormin 25mg (PVCs and Tachycardia), Junel (endometriosis), Tylenol 3 (Osteoarthritis), Zantac 150mg 2/day (acid reflux), Klonopin 1mg (Panic Disorder), Imitrex 25mg (migraines), Zofran 8mg (nausea)
Currently in: REMISSION Thought it was a flare but it's just scar tissue from my resection. Dealing with a stricture. Remission from my resection, 19 years and counting.
09-14-2013, 10:50 PM   #13
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I had braces at 13-14 and wasn't diagnosed till years later. I don't think there is any correlation.
09-15-2013, 07:46 AM   #14
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I do know that some say that Mercury fillings can cause autoimmune diseases and immune responses is some people...
09-17-2013, 01:17 PM   #15
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I have a lot of fillings from younger years, have had an expander, braces, and retainers twice each. I still have "permanent" braces on the back of my bottom teeth.

One day, I would like to get all the mercury fillings removed and replaced with mercury-free fillings, since they are correlated with chronic illnesses.
Crohn's Disease - Significant Narrowing in Ileum - 25 years old - Diagnosed '07
Lactose/Gluten Intolerance
Myofascial Pain Syndrome

Currently taking:
Whole foods multivitamin
Probiotics (including homemade sauerkraut and kombucha)
Digestive Enzymes
Sublingual B-12 spray
Tumeric Curcumin

Have taken:
Entocort - summer 2011/2013
Pentasta (up to 4g) - until 04/12/2011
09-17-2013, 01:41 PM   #16
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Son never has had a cavity and he got braces less than a year before diagnosis and he'd probably already been sick at least a year.
Three passions, simple but overwhelmingly strong, have governed my life: the longing for love, the search for knowledge, and unbearable pity for the suffering of mankind. Bertrand Russell
09-17-2013, 02:26 PM   #17
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I just had a couple fillings done yesterday. I had braces for 3 years as a teenager, I had retainers before & after braces, and I've had a number of fillings done over the years (no mercury/metal fillings though, all of them are the clear/white ones). I didn't develop IBD until just before I turned 30. My hubby has had few fillings and he never had braces nor a retainer, and he's healthy as a horse. So anecdotally in our house, braces = IBD. I would take that with a large grain of salt obviously though!
09-20-2013, 07:15 PM   #18
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Both of my kids that have Crohn's did/do have braces, but I'm pretty certain the younger one was sick when he got them.
09-21-2013, 07:03 AM   #19
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I have fillings before and after my diagnosis. Had braces on about 5 years after diagnosed and have them back on now 8 years later. Currently on aza.
Azathoprine 100mg
Just started actimel sept 13
09-21-2013, 02:48 PM   #20
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I haven't had any of these and no cavities to date.
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

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09-21-2013, 04:45 PM   #21
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I'm 49 and I have braces. I was diagnosed before the braces

Diagnosed 10/02/2012 Crohns Colitis
05/28/14 Surgery Abscess due to Fistula
09/18/2014 Surgery Total Proctocolectomy
rectum removed and closed up.
Best Decision I ever made.

Gastro Released me said I didn't need meds any longer

Have 3 kids only 1 at home 17 yr old is Type 1 Diabetic

Currently Taking
Multi Vitiman
09-21-2013, 07:44 PM   #22
Join Date: Sep 2013
I had my permanent retainer removed on Monday and have had two canker sores as a result which leads me to believe my body is detoxing. I haven't had one of these in years.

Anecdotal? You bet. Placebo? Maybe. What I know for sure is how great I feel.
09-28-2014, 03:05 PM   #23
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I didn't have many major dental issues pre-crohns but since diagnosis I have developed periodontal disease (my gums would swell, bleed and become super sensitive off and on throughout each flare). My teeth have not been in the best shape since.

On top of being treated for gum disease, starting in two weeks I am getting 8 fillings and am going to be getting braces for the first time by the end of this year (I'm 30 years old. Going to use Invisalign).

The dentist I use is more focused on making sure I am not flaring and that my gum disease is under control and THEN we will move onto getting my braces.
Crohn's-Colitis May 2012
Current Meds:
6-MP (100mg) / Asacol (4800mg)
Past Meds:
Prednisone/ Entocort / Flagyl
Current Supplements:
B12 Shot (1cc/mo) / Multivitamin / Vitamin D (1000iu) / Calcium (1200mg) / Omega 3 Fish Oil (4800mg)
Additional Info:
Anemia/Borderline Anemia - whole life
Generalized Anxiety Disorder - 2009 (Cognitive Behavioral Therapy, mindfulness meditation)


Crohn's Disease Forum » Extra Intestinal Manifestations » Mouth » Does anyone have braces? Retainer? Fillings?
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