Hi, My name is Jennifer.
I was diagonosed with Crohns Disease only about a year and half ago. I've been on Asacol (now Lialda), Budesonide and Vicodin. Before my bowel re-section surgery in May this year, 2013, I was on two different antibiotics 15 days out of every month for 7 months. After my surgery, I began Humira. Between the surgery and Humira, my abdomen seems to be doing better. However, I have this very debilitaing knee discomfort/ pain and anal leakage.
I have applied and been denied twice for social security disability and now am being represented for the hearing. I have only worked maybe 8 hours total in the last two years. Between the disease effects and the side effects from the medication, I found myself not being able to function clearly. I can't even keep up on the housework much less work in my profession as a private investigator which I have worked very hard and love so much.
I am lucky to have a husband who loves me dearly and provides me with health insurance but all my medication expenses and lack of income is taking a toll on our relationship.
I'm sure other people are going through the same if not worst experience and I just want to know if there is ever hope that I can be normal again someday or should I just surrender and deal with it.
Thank you and I appreciate the chance to share and vent!
I was diagonosed with Crohns Disease only about a year and half ago. I've been on Asacol (now Lialda), Budesonide and Vicodin. Before my bowel re-section surgery in May this year, 2013, I was on two different antibiotics 15 days out of every month for 7 months. After my surgery, I began Humira. Between the surgery and Humira, my abdomen seems to be doing better. However, I have this very debilitaing knee discomfort/ pain and anal leakage.
I have applied and been denied twice for social security disability and now am being represented for the hearing. I have only worked maybe 8 hours total in the last two years. Between the disease effects and the side effects from the medication, I found myself not being able to function clearly. I can't even keep up on the housework much less work in my profession as a private investigator which I have worked very hard and love so much.
I am lucky to have a husband who loves me dearly and provides me with health insurance but all my medication expenses and lack of income is taking a toll on our relationship.
I'm sure other people are going through the same if not worst experience and I just want to know if there is ever hope that I can be normal again someday or should I just surrender and deal with it.
Thank you and I appreciate the chance to share and vent!
