Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.



11-22-2013, 06:37 PM   #1
amaiello
 
Join Date: Nov 2013
New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.

I've been looking for an LGBT Crohns forum FOREVER. Finally somewhere I can talk to other gays about issues…yesss. So a little background about myself. I was diagnosed with UC in 2004/rediagnosed with Crohns last summer. I had my colon removed in 2005 and eventually Jpouch surgery and after that multiple surgeries for recurrent fistulas (flap repair, graciloplasty, plugs, setons, etc) Anyway…I have been on Humira for a little over a year which closed the fistula I've had for about 3 years considerably but I decided to do something less "invasive" and wanted to get it closed up for good with another plug. I feel like my progress from the medicine has been completely erased as I am having more drainage (Which I'm told is normal for right now) than I can handle. I won't know if the plug is still in until my follow up with my surgeon tuesday but I haven't seen anything come out. Anyone have experience with the plug working/not working?
11-22-2013, 08:42 PM   #2
lgpcarter
Senior Member
 
Join Date: Jun 2013
Location: Canada

My Support Groups:
Sorry to hear about your fistula troubles. I have them too and they are miserable. Soaking in a sitz bath right now, actually!

Just wanted to say that I know there aren't many people in the forums who have had experience with the plugs, so you might get more responses if you also post in the fistula sub forum.
__________________
Diagnosed in with Crohn's in large and small bowel in 2000. Fistulas followed soon after.

Seton placement (2) and fistulotomy December 2013. Setons removed July 2014. 3 more setons June 2018.

Laparoscopic Right Hemicolectomy July 2016, 25 cms removed

Current meds: Humira, Entyvio every 4 weeks, Levofloxacin 750 mg, Vitamin D

Previously: Remicade, Simponi, Pentasa, Sulphasalazine, Entocort, Stelara, Methotrexate, Prednisone, Imuran
11-22-2013, 09:01 PM   #3
nogutsnoglory
Moderator
 
nogutsnoglory's Avatar
 
Join Date: Sep 2009
Location: New York

My Support Groups:
Cross copied from gay forum for anyone with info on fistula plugs for this new user.
11-22-2013, 10:22 PM   #4
steph0823
 
Join Date: Mar 2013
Location: cape coral, Florida
I had plug placement 2 weeks ago today. I'm having more drainage then before too and my dr said its normal. I was worried about the plug coming out too and was told that I would feel it if it came out.
Reply

Crohn's Disease Forum » Surgery » Fistulas, Fissures and Abscesses » New here: Needing some fistula support. Just had my 5th fistula repair and 2nd fistula plug placement.
Thread Tools


All times are GMT -5. The time now is 09:08 AM.
Copyright 2006-2017 Crohnsforum.com