Crohn's Disease Forum » Support Forum » I have had Crohn's since 1983

12-09-2013, 03:11 PM   #1
Join Date: Nov 2012
Location: dexter, Iowa
I have had Crohn's since 1983

Hello,I am new to group and I have had Crohn's since 1983. I am in remission for the first time on remicade infusions through a port. Unfortunately I have contracted a staph infection and I am a carrier, now what?I haven't had remicade for 2 mos, I am waiting for a call from my doc. I may have to get it at home?

Last edited by afidz; 12-10-2013 at 10:27 PM. Reason: hard to read
12-10-2013, 04:55 PM   #2
Cross-stitch gal
Cross-stitch gal's Avatar
Join Date: Dec 2011
Location: Vancouver, Washington

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Hi and welcome to the forum! I'm afraid that I have not been on remicade or humira. But, I am tagging a good friend of mine afidz who has. Maybe she might have some answers for you. Hope you can get treated and taken care of soon.
Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

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12-10-2013, 10:30 PM   #3
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afidz's Avatar
Join Date: Jun 2012
Location: Mckinney, Texas

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Sorry to hear about your infection, I am no stranger to them, they can be difficult to deal with. Everyone carries staph and strep on their skin, most of the time though the bacteria will die before it has a chance to reproduce. Are you on antibiodics? Did the infection cause any wounds? Was it in the port site?
I have never been on Remicade, not sure why you would receive it at home. Are you strictly homebound? If you were to get it at home you would definitely have to have home health care to monitor you while you get the infection.
Crohn's since 2007
15 Abdominal Surgeries since 2008
Severe Non-repairable abdominal hernia
Ankilosing Spondylitis
Inflammatory Arthritis

Failed meds:
Asacol HD

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