Most of the stopper in vials are made of latex as well.
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MTX and maybe Humira for The Little Farm Girl
- Thread starter Farmwife
- Start date
FW,
Maybe she is getting it just from having sensitive skin. One of my kids reacts to every little thing like that. I would mention it to the doctor though.
Maybe she is getting it just from having sensitive skin. One of my kids reacts to every little thing like that. I would mention it to the doctor though.
So I'm a bundle of nerves again.:confused2:
She now has more pain in her spine. The rheumatologist called and said he still wants more time for the mtx to work but has asked that we put Grace on a ten day bust of prednisone and the keep her on 5 mg of prednisone for the next 7 weeks. He's hoping it's just enough to help her stabilize.
Well........................ I said she has tested low in cortisol once and her new doc wants to make sure she doesn't have Addison disease. Then the doc said to get her labs done pronto and find out.
She did labs this morning and now we wait. Her gp said if it comes back low again that more intense testing will have to happen. Great!
Also my son and her are getting vaccinated for the first times. So I'm even more worked up
:cool2:Off to drink my sorrows away.........Mt. dew of course.:ymad:
She now has more pain in her spine. The rheumatologist called and said he still wants more time for the mtx to work but has asked that we put Grace on a ten day bust of prednisone and the keep her on 5 mg of prednisone for the next 7 weeks. He's hoping it's just enough to help her stabilize.
Well........................ I said she has tested low in cortisol once and her new doc wants to make sure she doesn't have Addison disease. Then the doc said to get her labs done pronto and find out.
She did labs this morning and now we wait. Her gp said if it comes back low again that more intense testing will have to happen. Great!
Also my son and her are getting vaccinated for the first times. So I'm even more worked up
:cool2:Off to drink my sorrows away.........Mt. dew of course.:ymad:
Good luck. Will be keeping my fingers crossed with you! How long until you get the results?
Oh dear. I'm so sorry. I'm praying for little Grace.
A had her boosters in her arms but they were extremely sore that night and the following day. She had the flu shot, pneumovax and dTp. They even became red and swollen and she had a fever. I gave Tylenol and she managed (though grumbled a lot, lol). I think that is a pretty typical reaction. Next time I will try Tylenol before and after the shots to see if it makes a difference.
Hope Grace is feeling better soon!!
Hope Grace is feeling better soon!!
To up date my journal...I mean thread.
Ended up at the docs this evening with Grace.
Still couldn't walk much and fever at a 103.
So her new docs said she needs to skip the mtx until the fever break.
So I know have a girl with swollen knees, hurting belly and one ticked off mom:ymad:
questioning the vaccine decision.
Happy weekend y'all.:cool2:
Ended up at the docs this evening with Grace.
Still couldn't walk much and fever at a 103.
So her new docs said she needs to skip the mtx until the fever break.
So I know have a girl with swollen knees, hurting belly and one ticked off mom:ymad:
questioning the vaccine decision.
Happy weekend y'all.:cool2:
New Rheumo or ped???
Since the rhuemo prescribed you need to talk to them.
Fever from vaccinations is typically low grade ( not 103).
Plus a fever on immunosuppressants is an automatic call to the prescribing doc ( in this case rhuemo).
so they can decide if JIA is flaring causing the fever or illness or whatever. else...
and what to do about mtx.
Hope she feels better.
Since the rhuemo prescribed you need to talk to them.
Fever from vaccinations is typically low grade ( not 103).
Plus a fever on immunosuppressants is an automatic call to the prescribing doc ( in this case rhuemo).
so they can decide if JIA is flaring causing the fever or illness or whatever. else...
and what to do about mtx.
Hope she feels better.
Called rheumatologist. No call back. Doc tried. No call back.
I'll call again in the morning. I love our rheumatologist but he's never available and his nurses are crazy busy. He's the only one on this side of the state.
They gave her shots (5) in her legs. I'm hoping this is the reason for the increase pain but I know very well that this might have triggered JRA or IBD flare up. I hope to God that I'm being dramatic.
Her fever after meds is 100.7. So an improvement.
BTW the gp said it's not uncommon to get fevers that high from the flu shot.:yrolleyes:
But did say if her fever his a 104 to get her to the ER. :yfaint:
I'll call again in the morning. I love our rheumatologist but he's never available and his nurses are crazy busy. He's the only one on this side of the state.
They gave her shots (5) in her legs. I'm hoping this is the reason for the increase pain but I know very well that this might have triggered JRA or IBD flare up. I hope to God that I'm being dramatic.
Her fever after meds is 100.7. So an improvement.
BTW the gp said it's not uncommon to get fevers that high from the flu shot.:yrolleyes:
But did say if her fever his a 104 to get her to the ER. :yfaint:
I'm thrilled that Grace's fever has broken. But feel horrible that you and your son feel sick! We've had some astonishingly luck with oscillococcimum. I had never used homeopathic remedies and dare I say don't really believe in them. A neighbor gave me a few capsules to try. I took one on Day 1 of what seemed like the flu. I was over it the same day. I gave my children a capsule when they started what seemed like a very bad cold. It was over the same day. Lucky Vitamin has it the least expensive that I've been able to find.
In any event, feel better soon!
In any event, feel better soon!
Hope you get well fast! I am shocked they gave her that many shots at once especially since she is on methotrexate an immune suppressant. I never let the docs give my kids more than one shot in a day. We also did very slow vaccination and spread them out way longer. I think a lot of the issues kids have with vaccination is from overwhelming the immune system. If she needs shots again in the future I would definitely talk to her doc about spacing them. Hope you guy are all feeling better fast!
They grow so fast! I can't believe my baby is five and now she is finally sleeping in her own bed and not comming into mine. But I actually miss her! My baby is growing up!
Happy birthday Grace, you are getting so big!!! I hope she has the best birthday ever!
Happy birthday Grace, you are getting so big!!! I hope she has the best birthday ever!
Thanks Kim.
Grace's birthday went well.
Her party is coming soon so she's happy she has two birthdays.
Grace has started low dose prednisone therapy. Hopefully it will be a little push in the right direction
Gi wise, she only says her belly hurts. No poo problems and over all seems stable in the GI department. Hopefully we're on are way to remission.
Thanks everyone for listening and reading. I know the drama gets old and to tell you the truth it gets older faster for Grace and I.
I'm trying to take sometime away from the reading and researching.
I knew it was bad when I had to double my ulcer meds.
So I hope y'all take care and I'll be checking in when I can.:ghug:
:bigwave:
Grace's birthday went well.
Her party is coming soon so she's happy she has two birthdays.
Grace has started low dose prednisone therapy. Hopefully it will be a little push in the right direction
Gi wise, she only says her belly hurts. No poo problems and over all seems stable in the GI department. Hopefully we're on are way to remission.
Thanks everyone for listening and reading. I know the drama gets old and to tell you the truth it gets older faster for Grace and I.
I'm trying to take sometime away from the reading and researching.
I knew it was bad when I had to double my ulcer meds.
So I hope y'all take care and I'll be checking in when I can.:ghug:
:bigwave:
I'm glad Grace seems to be headed in the right direction. I understand what you mean about wanting to take time away. I want desperately to not feel the anxiety and pressure that I feel right now. Coming here both relieves the anxiety and makes it worse, though I realize that sounds ridiculous. We just want what's best for our girls and hopefully mtx is the magic answer for us both.
Glad she is doing a little better! Hope she has a great party!
Happy Birthday, Grace! I am glad there has been some improvement!
crohnsinct
Well-known member
Oh No! Poor Grace! :voodoo::voodoo::voodoo:
Silver Lining = A whole cake to yourself! :ylol::dance::tongue:
Silver Lining = A whole cake to yourself! :ylol::dance::tongue:
Sorry to hear about the party! Hopefully the flowers helped and the rescheduled one will be awesome!
- Location
- Tipperary, Ireland
Sorry to hear about the party and the storm. Really glad grace is feeling better- happy birthday
Hi all,
Grace started Humira and she's still struggles with pain somewhere.
However she just started, so time will tell.
We had her party and it was SO MUCH FUN.
She was happy and running her little legs off.
She got all the princess stuff in our town. lol
I'm having computer problems and to tell you the truth I've enjoyed the quiet and almost Amish life. Still it will be nice to have my computer back.
I hope all is well.
Hugs
Grace started Humira and she's still struggles with pain somewhere.
However she just started, so time will tell.
We had her party and it was SO MUCH FUN.
She was happy and running her little legs off.
She got all the princess stuff in our town. lol
I'm having computer problems and to tell you the truth I've enjoyed the quiet and almost Amish life. Still it will be nice to have my computer back.
I hope all is well.
Hugs
HELP ANYONE!
Grace is having normal BM's. Today she had two BM's. That's awesome.
It's been along time (1 yr) since she's been normal in this area. YA HUMIRA!!!:dusty:
BUT
Her tummy (abdominal) pains are the worst it's been in a year. I had to give two pain meds for the cramping to stop.
She walked through the grocery store with her hand on her belly the whole time.
I'm so happy the BM's are coming but why all this pain now?
Grace is having normal BM's. Today she had two BM's. That's awesome.
It's been along time (1 yr) since she's been normal in this area. YA HUMIRA!!!:dusty:
BUT
Her tummy (abdominal) pains are the worst it's been in a year. I had to give two pain meds for the cramping to stop.
She walked through the grocery store with her hand on her belly the whole time.I'm so happy the BM's are coming but why all this pain now?
ABX are a double edge sword.
they help DS have "normal" BM's without miralax BUT... they cause cramping since they speed up the system
which is why normal crohn's kids get runny D with abx but constipated crohn's kids "GO normal"
they help DS have "normal" BM's without miralax BUT... they cause cramping since they speed up the system
which is why normal crohn's kids get runny D with abx but constipated crohn's kids "GO normal"
No words of wisdom from me (you are all light years ahead in that department) but hope she feels better soon!
The antibiotics she took for her double ear infection
She's already had that. She's not aloud to get it AGAIN.:ymad:
Just an update.
Grace received her third Humira shot and I'm hoping that she's heading in the right direction.
It seems her joint pain is easing a bit and she just looks healthier. :ybiggrin:
We also were given the ok to start the wean her off of pred. :thumright:
I guess the thing she's dealing with (again) is constipation and nausea.:ymad:
Hopefully that will be fixed when the drugs kick in more.
I hope y'all have a good week-end.
Grace received her third Humira shot and I'm hoping that she's heading in the right direction.
It seems her joint pain is easing a bit and she just looks healthier. :ybiggrin:
We also were given the ok to start the wean her off of pred. :thumright:
I guess the thing she's dealing with (again) is constipation and nausea.:ymad:
Hopefully that will be fixed when the drugs kick in more.
I hope y'all have a good week-end.
Good luck, hope it all goes well. You both deserve a break.