Crohn's Disease Forum » Surgery » Surgery on Immunosuppressants?

12-23-2013, 05:20 AM   #1
Join Date: Dec 2013
Location: vancouver, British Columbia
Surgery on Immunosuppressants?

Hi, I've been reading posts on this forum for years, its been very informative and helpful.

I was diagnosed with UC in 2004 (12 years old) and after trying all the medications I had a colectomy in 2009. Since it was UC (or so we thought at the time), they left behind the rectal stump for reconnection. The following few years were great, I finally had a life outside of the hospital again, but obviously that just couldn't last... I continued to have some bloody mucous/discharge from the bottom end but it was not bothersome, until I developed two perianal fistulas. Then things just kept piling on- arthritis, erythema nodusum, uvitis/scleritis, chronic bronchitis. Foolishly, I tried to avoid the proctectomy my doctor kept pushing because I thought I would be able to get those few inches of colonic inflammation under control without another major operation (tried LDN, naturopaths, diets, IV therapy in Mexico).
Well, now things are even worse- I got diagnosed with pyoderma gangrenosum last week, and now I've been admitted in hospital because they also found that I have vasculitis- inflammation in my major blood vessels. I'm at such a loss, these new diseases I've been told are independent of IBD and will follow their own course. Treatment sucks - all they really have is prednisone (thought I was done with that after my surgery).
My GI doctor is still insisting on the proctectomy surgery- if its not even going to help with these new diseases, is it even worth the risk of going through a major operation while on prednisone? I know the healing is difficult enough on its own, I'm worried about the added stress of being immunosuppressed.
12-23-2013, 07:00 AM   #2
Senior Member
Join Date: Sep 2012
Location: UK
I'm not sure about prednisolone but I had to stop my Humira prior to my operation.

My consultant said there was very little evidence that suggests taking it while going through an operation could cause harm but better safe than sorry.
Keep fighting! It gets better!
12-24-2013, 07:47 AM   #3
Senior Member
2thFairy's Avatar
Join Date: Sep 2010
Location: Dallas, Texas

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I was on high-dose Remicade every 4 weeks prior to total colectomy and did not have to stop the infusions prior to surgery. Every surgeon has their preference. My surgeon held the belief that it did not matter what UC meds I was on prior to surgery and continued on all of them up to the evening before. I had no added complications because of this either.
Ulcerative colitis

Total colectomy with ileostomy featuring Sideshow Bob since January 2012

"The colon seems an unlikely candidate for dramatic effect, but now and then it serves that purpose well." The Associated Press Guide to Punctuation

Crohn's Disease Forum » Surgery » Surgery on Immunosuppressants?
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