Hi there. Welcome. I am so sorry to hear about your baby. I know your heart is breaking.
My son has been treated with Specific Carbohydrate Diet and about 30% of calories from formula (called EN) for about 1.5 years. He became sick very suddenly. We hoped it was an infection but after two weeks of being violently ill and losing 20 pounds, it was clear this was something more. Because his case was not exactly typical, originally drs suspected he could have Auto Immune Enteropathy which is very rare for a teen. After more testing including genetics, Crohn's is the most likely culprit here (although the Children's Hospital in Cincinnati still won't say that definitively. Boston is sure so there you have it).
I wont bore you with the whole story but I'm not really sure what put him into remission. IV and oral steroids were magic for him. He went from not able to walk to the bathroom to shooting baskets in a few days. When he tried to wean off steroids the symptoms started to come back so he used EEN first and the Specific Carbohyrdate Diet/EN combo to try to ease his transition off.
I get the concern about meds. I had them too. I spent hours every night on internet reading studies, and looking for other options that werent written by a kook. But when i saw him go from ICU to doing great to slipping backwards, there was no way I was going to let him go back to that ugly place. None. We made the decision to start Remicade and then we had a surprise. During test to start Remicade his labs were good, his FCP normal, and he had no symptoms. Drs wanted to wait a few months so we kept up the SCD with about 30% of calories from different formulas. A few months after that a scope was clean and biopsies showed microscopic inflammation in just a few areas. We stayed the course until the next scope showed all good. I hate to type that in case I am jinxing him! He is monitored with labs, fcp, scopes, etc.
I really don't know how common it is for the steroid then EEN then SCD with EN approach to work this well. The drs in our practice do recommend it to patients and are in midst of some studies that are showing some good results with a number of patients. They also have a massive Remicade infusion center. When he goes in for checkups it is common for another dr to come in and say "oh hi, just wanted to see him for myself" and "can't believe you went from where you were to here." Not everyone on this forum is a fan of diet and each time I post this i get some replies and messages telling me it diets don't work.
You having a baby adds so much more complexity. I would get second and third opinion, ASAP, with people who have experience with toddlers and IBD. Boston's Children's will do a review remotely. Go to their website and get that started.
I'm happy to answer any questions. Please keep us updated. We are pulling for him and supporting you. I know how hard the first few months are. It gets better. I promise.
EDIT: He will be normal. I think many of the people who are doing well with Crohn's aren't on this forum bc they are out living their lives. They arent thinkng about it. My son plays sports. I'm off to pick him up now!