uphill battle…
I was Diagnosed with Ulcerlative Colitis back in January of 2007. Speeding up. February of 2011, I had the ultimate flare up. My GI started me on Remicade March of that year. By June i was in and out of the hospital, was so sick they ended up diagnosing me with Mono. Developed a terrible cough that would not go away, still continually in and out of the hospital. By October of 2011 they starting discussing the Ilestomy surgery. By November 3rd, it was done. I had a series of 3 surgeries bringing me up to May of 2012 for the reversal. After the reversal thats when things got even worse. I developed a fistula and was I was put on Cypro and Flagyl for the next year or so, and then every time i would stop taking the Cypro my symptoms would worsen and I would have what felt like a flare up. I had my Fisula surgery in July of 2012, and ever since then I've had to use gause pads and zinc oxide to try to subside the irritation from going to the bathroom and wiping and the gause catches leakage that i have been experiencing ever since the fistula surgery. My fiancé finally made me switch doctors because she felt like he wasn't doing anything but continuing to up and lower the doses of Cypro after almost 2 years. I had seen a nutritionist to get info on diet, but everything is so black and white. I've done so much research as has my fiancé and the medical way and the organic way are so polar opposite it'll make your head spin. I was told by my first GI that diet was not an issue and if something bothered you to remember it and stop eating it. My fiancé didn't like that very much. I eventually switched drs and now after a long battle of not knowing after the surgery i was finally diagnosed with Crohn's disease which i was told wouldn't happen had i gotten the surgery, which i did. AND….now i have Crohn's, no colon, and a really big chip on my shoulder. I was put on Humira in early November of 2013, and so far I'm not pleased. I was put immediately on an every two week maintenance plane but that was NOT working. Then my GI gave me the Start up kit, and i almost feel like it works for a week and then it wears off? Does anyone else have the same experience with Humira?
Unfortunatly for me i thought going to a new DR would be better for me, since my fiancé and I are getting married next month…but I'm still pretty frustrated. I always think about if i didn't get the surgery, but my fiancé always tells me not to live in the past and that nothing can be done about it now, and to just do everything i can to make tomorrow better. so now she is trying to do research on juicing. I've been trying to figure out what will work and what won't. id love some feedback, its been a rough couple of years, and i just feel too young to feel this way. I just want to know when it will get better!!!!!!!!!!! IF EVER!!!!!! I get so mad because i know people can live with this disease comfortably and they just deal with the day to day stuff, but why can't i get mine under control!!??!?!?!?!?
any advice i'm willing to try!!!!
I was Diagnosed with Ulcerlative Colitis back in January of 2007. Speeding up. February of 2011, I had the ultimate flare up. My GI started me on Remicade March of that year. By June i was in and out of the hospital, was so sick they ended up diagnosing me with Mono. Developed a terrible cough that would not go away, still continually in and out of the hospital. By October of 2011 they starting discussing the Ilestomy surgery. By November 3rd, it was done. I had a series of 3 surgeries bringing me up to May of 2012 for the reversal. After the reversal thats when things got even worse. I developed a fistula and was I was put on Cypro and Flagyl for the next year or so, and then every time i would stop taking the Cypro my symptoms would worsen and I would have what felt like a flare up. I had my Fisula surgery in July of 2012, and ever since then I've had to use gause pads and zinc oxide to try to subside the irritation from going to the bathroom and wiping and the gause catches leakage that i have been experiencing ever since the fistula surgery. My fiancé finally made me switch doctors because she felt like he wasn't doing anything but continuing to up and lower the doses of Cypro after almost 2 years. I had seen a nutritionist to get info on diet, but everything is so black and white. I've done so much research as has my fiancé and the medical way and the organic way are so polar opposite it'll make your head spin. I was told by my first GI that diet was not an issue and if something bothered you to remember it and stop eating it. My fiancé didn't like that very much. I eventually switched drs and now after a long battle of not knowing after the surgery i was finally diagnosed with Crohn's disease which i was told wouldn't happen had i gotten the surgery, which i did. AND….now i have Crohn's, no colon, and a really big chip on my shoulder. I was put on Humira in early November of 2013, and so far I'm not pleased. I was put immediately on an every two week maintenance plane but that was NOT working. Then my GI gave me the Start up kit, and i almost feel like it works for a week and then it wears off? Does anyone else have the same experience with Humira?
Unfortunatly for me i thought going to a new DR would be better for me, since my fiancé and I are getting married next month…but I'm still pretty frustrated. I always think about if i didn't get the surgery, but my fiancé always tells me not to live in the past and that nothing can be done about it now, and to just do everything i can to make tomorrow better. so now she is trying to do research on juicing. I've been trying to figure out what will work and what won't. id love some feedback, its been a rough couple of years, and i just feel too young to feel this way. I just want to know when it will get better!!!!!!!!!!! IF EVER!!!!!! I get so mad because i know people can live with this disease comfortably and they just deal with the day to day stuff, but why can't i get mine under control!!??!?!?!?!?
any advice i'm willing to try!!!!