01-28-2014, 12:03 PM   #1
ronroush7
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Cost of Stelara

For those of you who use Stelara, is it very expensive?
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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
01-28-2014, 11:20 PM   #2
Essieluv
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I am not using Stelara. However, I did a quick search for patient assistance programs, and it appears that the company offers a few. Info is on the Stelara website.

Are you currently on Stelara, or are you going to be starting it soon? I'm actually really interested in it's use for IBD. I'm wondering about possibly mentioning it to my GI as a treatment option for myself.
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01-28-2014, 11:40 PM   #3
ronroush7
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I have an appointment with my GI on the 13th of February to talk over the results from my visit with a specialist. One of the recommendations was for me to switch from Remicade to Stelara."

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01-28-2014, 11:42 PM   #4
Essieluv
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Ah, ok. If it's not too much to ask, would you mind keeping me updated on what happens?
01-29-2014, 12:27 AM   #5
ronroush7
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No problem. It is a rare side effect but the Remicade was giving me inflammation of the hair follicles.

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05-30-2015, 11:03 PM   #6
Crohn2357
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For those of you who use Stelara, is it very expensive?
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I wonder about that too.
05-31-2015, 10:30 AM   #7
FrozenGirl
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In Alberta it is 4465.58 per dose. (Not including any pharmacy mark up) So pretty expensive. I did some research when considering this drug (currently I'm trying Remicade and methotrexate) and it is made by the same company as Remicade and they have an assistance program (Bioadvance in Canada) that I'm assuming is very similar to the one for Remicade.
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05-31-2015, 11:38 AM   #8
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Also, it depends of the dose. I have 90 mg, and I think it's that for most of the people with Crohn, but just be careful, because someone who uses Stelera for psoriasis might tell you a smaller cost, because often their dose is 45 mg.

But as it's been said, in Québec, and Canada I suppose, BioAdvance offers a very good assistance program. For the fees but also for the patient. They do a great job.

Do you plan to start Stelara soon or Remicade seems to work so far?
05-31-2015, 11:58 AM   #9
Crohn2357
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I may start stelara. I'm wondering the cost without any insurance. The raw cost of one injection.
06-02-2015, 06:42 AM   #10
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My GI told me it's about 8,000$ (canadian). It's crazy
06-02-2015, 06:54 PM   #11
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I would also check with your insurance. I know that my insurance does not cover Stelara for Crohn's as it is "not approved for the treatment of Crohn's". According to my insurance Stelara is only approved for the treatment of Psoriasis. There is a chance that without fighting with them, they will not approve it for you..
02-16-2017, 05:01 PM   #12
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I may start stelara. I'm wondering the cost without any insurance. The raw cost of one injection.


I was told today one injection was $10,000. by my Dr's nurse. There's no way I can afford that. Loading does after insurance $1400.
02-17-2017, 10:13 AM   #13
my little penguin
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Call the drug company most have copay assistance cards that cover all if not most of the copay
And bring it down to 5-25 dollars

http://www.janssenprescriptionassist...st-assistance#
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02-17-2017, 11:58 AM   #14
ronroush7
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I am on Humira now.
03-02-2017, 07:20 PM   #15
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My doctor wants to start me on Stelara; this is my first biologic. I've been taking Entocort for a while.

I'm on SS disability & have Medicare A, B D.

I just talked to the nurse at the infusion center & she said my co- pay for Stelara is $3,300.00 but that there was an assistance program that would reduce my co- pay to $5- $15 if I qualify.

I just went to the Stelara website & it says patients with Medicare are not eligible for the co- pay savings card.

So what am I supposed to do? Of course I can't pay $3,300 per dose - - who could?

I had gotten my hopes up that I was finally going to get treatment that will make me feel better, & this information just crushes my hopes...

I'm 55 years old & my goal is/was to get the Crohn's under control and get to a point that I felt better & good enough to go back to work, at least part time, hopefully full time!

I know I can't be the only one with Medicare who needs biologic medication. What did you do about the cost & not qualifying for the co- pay assistance because you have Medicare drug coverage?

I would appreciate any experiences &/or advice or suggestions...I feel completely hopeless now of ever getting better.

Thank you,

Dana B
Lufkin, TX
03-02-2017, 07:32 PM   #16
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I'm on Medicare and have united healthcare advantage. I was told it would cost me $1400. for loading infusion and injections cost &10,000. I can't afford that either. I was very disappointed. I have taken three biologic and I'm not on any meds for Crohns at this time. I'm doing ok but I do have active Crohns. Dr is trying to get me approved now for Entyvo.
03-02-2017, 07:35 PM   #17
ronroush7
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I hope your doctor gets you approved

03-02-2017, 07:38 PM   #18
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Thank you and best wishes for you!
03-02-2017, 07:48 PM   #19
ronroush7
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Thanks

04-02-2018, 04:27 PM   #20
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I was the biggest cheerleader for Stelara since I participated in the clinical trials in 2006. Been waiting all these years for it since I have been through Humira, then Entyvio, then Remicade.

Even went on a consultation in 2016 with one of the worlds expert in Stelara, Dr Gil Melmed, which led the UNITI 2 study of Stelara that had 297 patients. I was so excited to finally getting to FDA approval.

Had the infusion and experienced very good results. I went through several phone numbers, was in constant touch with the Stelara nurse navigator, tried multiple ways to get in the patient assistance program. Rejected at every point since I was on Medicare and was also exceeding the maximum income and they counted my wife's pension as well.

I tried starting with the injection being given by a nurse at the hospital. The infusion center did not want to do injections, eventually I found the nurses that will go to your home to give injections. The hospital was going to order the injections, the specialty pharmacy was quoted with a 20% I needed to pay at $26000 for six injection pack (I could buy a new car every year at these prices). These injections need to be refrigerated to last a whole year. If you are new to Stelara and find after a few injections that it is not working, you are stuck with the rest.

Now I am using BriovaRX and injecting at home. The first injection was $3680! and the rest are $1200 each with Medicare limits. That comes to $9,600 a year, I still cannot afford it but it is my only choice at these point.(any other ideas ?)

My suggestion that are new to this is to get quotes on Humira, then Entyvio(did not work for me), your out of pocket costs are lower than the outrageous Stelara costs.
04-08-2018, 11:47 PM   #21
newdiagnosis
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Even though Stelara is expensive, I have found that it works very well and with minimal to no side effects. I think the price of Stelara is well worth it. Hopefully there will be generics of stelara sometime soon.
04-12-2018, 09:26 PM   #22
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As of yesterday, when the initial infusion was conducted,the total cost for the three doses was approx Aud $12,500. Fortunately, because of DVA ( veterans affairs) status , the cost to me was just $6.90! Other Private prescriptions cost AUD $39- so we are very fortunate once we have been accepted on this government sponsored scheme.

As Stelara has only recently been placed on the Australian Pharmaceutical Benefits Scheme, one had to go through the hoop to to be accepted as a new patient. By this I mean 3 months of Entocort, 6MP and Methotrexate, even though they have proved ineffective before.

I really feel for people that have private insurance and are get precious little back from their insurers.

For for those who have to pay the full cost for US and Canadian comparisons here is the equivalent price of s single 45 mg injection.
OZ USA CAN
$4693 USD $3626 CD$420

For UK conversion, divide the Aussie dollar by two-close enogh!

Hopefully, Stelara will work! I don't fancy another surgical resection of a metre of ileum at my age- this being on the cards.

Will wait and see and drop a post later. Fingers crossed.
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04-12-2018, 09:37 PM   #23
my little penguin
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Stelara Works very well for my kiddo
Private Insurance covers the cost
04-21-2018, 03:09 PM   #24
alex1947
 
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I just got the bill for the January infusion.

Total billed to the insurance company $17,207
My copay is $492.48
This counts to my $2200 maximum.

This means that the infusion is LESS than one syringe and is about 4 times the quantity.

Maybe they are trying to get you on Stelara, if it works, then they sock it to you with the syringes.

I wish there was a way to order the infusion and get on it but only put in a fourth the quantity and save the bag for later...
04-21-2018, 05:58 PM   #25
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It is shocking how expensive Stelara is.

When I had a physical with my primary care doctor, I mentioned I was moving to Stelara. He cracked some jokes about it's cost, but I hadn't received a bill yet, and I figured, oh well, all these biologics are expensive.

Cimzia, which I was on for 5 years, was something like $3800 a month.

I know Humira is in the same ballpark. I figured that Stelara, with half the frequency of injections, might be twice as much as Cimzia, so somewhere around $7500-8000.

I just about gagged when I saw the explanation of benefit from my insurance company. They paid $22,000 for a single, small syringe! And that is the negotiated rate!

I can't believe they approved Stelara without requiring that I fail all anti-TNFs and Entyvio first.
04-23-2018, 10:40 PM   #26
newdiagnosis
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Yeah, when I look at my bill it is pretty crazy how much they pay for stelara. However, I think there might be some form of rebates for the insurance companies. The pharmaceutical industry is a lot more complicated than meets the eye. There are so many complicated rebates/refunds to insurance companies and manufacturers that just by looking at the insurance payout might not show the whole picture.
04-24-2018, 12:14 AM   #27
my little penguin
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Ds was on humira for over five years prior to switching to Stelara
The cost of humira when taken at the higher frequency can be high as well


Price paid and negotiated price is very different
Especially in the hospital procedures
That’s why certain “brands” of drugs are preferred
And the preferred “brand” can change from one year to the next

For ds it works
04-24-2018, 10:58 PM   #28
newdiagnosis
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Yes, stelara works. And even though it is debatable somewhat, I think stelara is a much safer drug, which is why I chose it first line. It is more specific and functions downstream in the biomolecular level. I would say that immunosuppressive therapy is on a spectrum. Prednisone is like a jackhammer, humira is like a regular hammer, and stelara is like a chisel.
04-25-2018, 12:07 PM   #29
Scipio
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I would say that immunosuppressive therapy is on a spectrum. Prednisone is like a jackhammer, humira is like a regular hammer, and stelara is like a chisel.
Good simile.
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