Crohn's Disease Forum » Your Story » Out of Nowhere

02-21-2014, 02:39 PM   #1
Join Date: Feb 2014
Out of Nowhere

First I would like thank in advance the forum members for the valuable information you are sure to provide. I'm new here and I am new to Crohn's. In fact, until thirty days ago, the word Crohn's was not even on my vocabularies radar. In the last thirty day however, we have become extremely close acquaintances yet we are not friendly at all. I guess that my story is proof that God does have a sense of humor as no one else could have seen me silently laughing at the Irritable Bowel commercials on TV. This is how I met Crohn's. This nightmare began in November of 2012 when I visited my primary care physician with a breathing issue. I really only wanted to get a script for a new inhaler. My PCP in his infinite wisdom informed me that my lungs sounded like they have a touch of bronchitis and that he caught it early. He wrote me a script for amoxicillin to compliment my script for albuterol. I was out the door and on my way to the pharmacy. I took the amoxicillin perfectly as ordered for seven days and I figured that's that. By the time that seven more passed I was back in the Doc's office wheezing and coughing up blood. He told me that is was nothing to worry about and said he would give me something stronger. That's what I wanted to hear, nothing to worry about, while he handed me a seven day script for doxycycline. Another trip to the pharmacy on my way to feeling better once again. I took the Dox nearly as perfectly as the Amox an I was feeling spry and proud of myself. The next time I visited with Dr. Script I was only there to pick up my maint meds for PTSD. He noticed a sore on my arm, nothing unusual, but he felt it might be mrsa. Scared the shit out of me so I did not question him when he gave me Septra and Keflex. Over the next three months he prescribed me two more courses of Septra and Keflex and gently placed a script of Levofloxicin right beside the cherry on top. I had five courses of powerful antibiotics in four months and the crazy thing about it is that ol' Doc never ran the first test. Not a single test of blood, urine or tissue. No cultures to prove the I had ever had an infection at all prior or during his administration of all these antibiotics. Shortly thereafter I started to feel like shit. Tired, bloated, heavy, mopy, flu like and for the first time in my life I was terribly constipated. I visit my PCP every month for maintenance meds and each month I would explain these symptoms. Last November, 2013, I went ten days without a bowel movement so I took a exlax. It took two days and two multiple doses of exlax but the levy finally broke. When I finished my long overdue business my relief turned to concern as the bowl was full of blood. I passed it off and made a note to inform my pcp next visit. By January 14th, 2014 my lower abdomen and back hurt so bad and I was swollen from my waist to my ribs. I went to the ER where they did a CT with double contrast and tested blood, urine and stool. The infectious disease specialist first suspected pancreatitis but later confirmed that I had a really nasty c-diff infection, the new one with all the toxins, and a stricture blocking my poop. I was admitted to the hospital and administered IV Antibiotics for two days. A new blood test and the always poopular stool test confirmed c-diff was dead and the infectious disease hospitalist introduced me to a gastroenterologist who explained that I had Crohn's. My reaction was flat. Kinda like..."Ok, what the hell is that?" When he started to explain the bonus gifts i would be departing with I literally could not believe it. I am determined that Crohn's will not control me and prevent the things i love most. I expected the flare that started in the hospital to have ended by now but it hasn't. I have much respect for all of you.

Last edited by EricAddis; 02-21-2014 at 03:19 PM.
02-21-2014, 03:02 PM   #2
valleysangel92's Avatar
Join Date: Dec 2012
Location: United Kingdom

My Support Groups:
Hello, welcome to the forum.. Im sorry to hear how horrible you have been feeling, but glad you now have a definitive diagnosis and have found us .
Have you started a treatment plan yet?

If you still have tummy pain, heat packs can be a blessing, and if you get bloating, try some peppermint or ginger if it's unsettled.

If you struggle with constipation, your gastro can help with gentle laxatives to help regulate your bowel, try to stay away from strong laxatives that make the intestines contract as these can cause horrible cramps, go instead for stool softeners which make things easier to pass.

Anything you are unsure of can be run by us, we will do our best to point you in the right direction, just remember we aren't doctors, we are fellow patients and so we can't always answer anything and you should always check with a doctor before changing any of your treatment.

Everyone here is friendly and we are all in this together so don't ever be afraid to have a good moan if needed.

coeliac disease/Osteopenia /Crohns/Arthritis/
laperoscopic hemicolectomy 25/06/ 2013

Meds- Vedolizumab, pentasa, Lansoprazole, Vitamin D, prochlorperazine, Oramorph, MST, B12 shots My journey with crohns:

Allergic to - inflectra, aza

Non CD meds - Gabapentin, paracetamol, ventolin
02-21-2014, 05:48 PM   #3
Senior Member
pink&green's Avatar
Hello eric and you definitely came to the right place there is lots of support and advice on here. Keep us posted on you treatment plan and let us know if you have questions.
Hubby Diagnosed 12/15/90
1/3 colon removed
12 inches of small intestine removed
Appendix removed
2007 Hemorrhoids removed
2006 resection:
2005 first perianal fistula(removed 3x & lanced still keep coming back)
2014 partial nephrectomy (stage1)
Previously medications:Humira-anaphylaxis reaction, Remicade, Cimzia, Entyvio
Current medications:
B-12, 6mp, flagyl, prednisone,
Tramadol(fistula & joint pain)


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