Hi all!! I'm an undiagnosed case of I believe CD. This has been going on for approx 30 years!! Went to to ER when I was aprox 10yo with severe abdominal pain.... Checked me out for appendicitis and let me go! I remember not being able to eat drink or having a bowel movement for about 2 weeks!! Suffered for years w/mostly constipation as a child and bouts of abdominal pain! About 10years after that I found myself in the ER again with severe abdominal pain!! ER doc diagnosed me with severe constipation/gastroenteritis. Saw my GP who placed me on pericolace and stool softeners. Went with that for a few years then bam! Had the worse abdominal pain/vomiting....work up all done etc.... Ended up in the OR with peritonitis......removed about 12 in of small bowel and 6 in of colon to untangle both from a huge ball of scar tissue!! Pathology came back with ileitis and a yersinia infection! Crohns suspected but no definate diagnosis. Three months later after that major I developed a small bowel obstruction with perforation! Again emergency surgery was performed and a temporary ileostomy was done. @ that time the surgeon who performed the surgery was quite sure that I had CD so I was referred to a gastroenterologist who said he wasn't convinced I had CD and basically told me that I didn't need to see him again! Six months later I had the ileostomy reversed. Also suffered severe joint pain.
A few years pass and if course I have chronic constipation/and a few bouts of diarrhea. And thn it happens again!!! A small bowel obstruction.... And pathology doesn't really confirm anything!!! It's inconclusive so I go about my life again hoping it doesn't happen again!! So year b4 last again I have a small bowel obstruction buy was able to get by with bowel rest and rehydration. Another year goes by...... 2013 spring again I have a bowel obstruction and this time I need surgery again!!! Ugh! This time they find 2 large square stones obstructing the small intestine and conclude that it's from debris not passing thru and calcifying. So I go on with my life once more and now I have a GI bleed passing with my stool! So, I have a consult with a surgeon and gastro and they decide to do an abdominal CT which showed nothing and a colonoscopy! Low and behold the source of bleeding is from ulcers on the terminal ileum!! So they decide to inject epi to stop the bleeding which worked but no biopsy was taken!!! I ask if this could be CD and the answer was I doubt it....they think it's caused by NSAIDs! Really????? I'm so frustrated and confused!! I'd appreciate any input anyone may have!!!
A few years pass and if course I have chronic constipation/and a few bouts of diarrhea. And thn it happens again!!! A small bowel obstruction.... And pathology doesn't really confirm anything!!! It's inconclusive so I go about my life again hoping it doesn't happen again!! So year b4 last again I have a small bowel obstruction buy was able to get by with bowel rest and rehydration. Another year goes by...... 2013 spring again I have a bowel obstruction and this time I need surgery again!!! Ugh! This time they find 2 large square stones obstructing the small intestine and conclude that it's from debris not passing thru and calcifying. So I go on with my life once more and now I have a GI bleed passing with my stool! So, I have a consult with a surgeon and gastro and they decide to do an abdominal CT which showed nothing and a colonoscopy! Low and behold the source of bleeding is from ulcers on the terminal ileum!! So they decide to inject epi to stop the bleeding which worked but no biopsy was taken!!! I ask if this could be CD and the answer was I doubt it....they think it's caused by NSAIDs! Really????? I'm so frustrated and confused!! I'd appreciate any input anyone may have!!!