Crohn's Disease Forum » Support Forum » Undiagnosed Club » Prometheus IBD testing

03-04-2014, 01:30 PM   #1
Join Date: Feb 2014
Prometheus IBD testing

Has anyone had this test done? Did it help to diagnose you? How long did it take for results to come back? I just had the blood drawn for it today. I have high hopes that it will help my doctor to diagnose me, as I had a CT scan that showed inflammation in patchy places of my colon (that directly correspond to areas I have pain), but a colonscopy came back clean. I just want answers so that we can get a treatment plan going and I can hopefully start feeling better.
03-04-2014, 02:50 PM   #2
Senior Member
Essieluv's Avatar
I had the prometheus blood test done before I was initially diagnosed. It came back saying that I did not have the right genes for Crohn's or Colitis, however my symptoms were clear cut Crohn's symptoms. So, even though the test was negative, I was still diagnosed with Crohn's. I hope this helps?
Meds that failed me: Remicade, Humira, Cimzia, Entocort.

Waiting for a cure!
03-04-2014, 03:49 PM   #3
Senior Member
Join Date: Feb 2014
Location: South bend, Indiana

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I have had the test but it's not back yet either

03-04-2014, 05:50 PM   #4
Jmrogers4's Avatar
My son had the test, already diagnosed with Crohn's at the time but GI wanted a bigger picture as symptoms, test, growth, etc were not all matching up. Came back as having the Crohn's markers and genetic markers for fistulzing/stricturing crohn's

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
03-06-2014, 07:27 AM   #5
Join Date: Feb 2014
Thanks guys. How long did it take for your results to come in? I'm thinking a few weeks....?
03-06-2014, 03:21 PM   #6
Senior Member
carrollco's Avatar
Join Date: Dec 2010
Location: Grass Valley, California

My Support Groups:
Mine came back positive for genetic Crohns with the markers for fistualizing disease. It was 2 weeks if I remember correctly.

First diagnosed 12/4/10
Humira 4/7/11 and lovin' it

Previous Meds:

Methotrexate--had kidney/liver damage
Lialda--allergic to aspirin--but didn't know until my Crohn's got much worse.
Prednisone--only when I have to!
03-06-2014, 03:30 PM   #7
alyssa519's Avatar
Join Date: Aug 2013
Location: chicago, Illinois
I was diagnosed through colonoscopy/endoscopy but I've gotten Prometheus tests done to look at antibodies and to get a bigger picture of my disease activity. Normally took about a week for the results to get to my doctor.

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