Hi-
I've been on Remicade for the last 8 years and it was like my miracle drug. It put me in remission, healed fistulas, and I had no side effects from it for the longest time. Last October I started noticing that I was getting very tired in between my treatments, having increased BM, and overall feeling bad. My doctor upped the treatments to 900 MG (prev at 500) and changed from every 6 weeks to every 5 weeks. He also added 6MP and did the antibody bloodwork. Bloodwork came back negative for antibodies, and even though the 6mp has helped, I am still not anywhere near as well as I have been in the past. My fear is that the remicade just isn't working. Has this happened to anyone else- it not working even though you are negative for antibodies? I'm seeing my doctor soon and hoping to try a different treatment, b/c I'm not sure I can continue with Remicade if I'm not feeling the benefits. I would appreciate any thoughts or guidance!
I've been on Remicade for the last 8 years and it was like my miracle drug. It put me in remission, healed fistulas, and I had no side effects from it for the longest time. Last October I started noticing that I was getting very tired in between my treatments, having increased BM, and overall feeling bad. My doctor upped the treatments to 900 MG (prev at 500) and changed from every 6 weeks to every 5 weeks. He also added 6MP and did the antibody bloodwork. Bloodwork came back negative for antibodies, and even though the 6mp has helped, I am still not anywhere near as well as I have been in the past. My fear is that the remicade just isn't working. Has this happened to anyone else- it not working even though you are negative for antibodies? I'm seeing my doctor soon and hoping to try a different treatment, b/c I'm not sure I can continue with Remicade if I'm not feeling the benefits. I would appreciate any thoughts or guidance!