- Location
- Southern Indiana
Hi everyone!! I have been browsing this site since happening upon it right after I was diagnosed on 1/31/2014. First off, I think it's wonderful how open and helpful everyone is here!! Thank you, even though I've just joined I feel like I have gotten so much insight on the disease just from other people's posts. You all are the best!!!
So, here I am a month and a half after being diagnosed and I feel very lost... I was diagnosed with Crohn's by a GI after a colonoscopy. I was still coming out of sedation when the doctor came in to explain the disease to me. He put me on Sulfasalazine and told me to make an appointment with him in 6 weeks. No other info...
For the 2 weeks following the colonoscopy I was in complete misery. I don't know if the pre-colonoscopy prep threw me into a flare or what happened but I felt like I was dying! Constant cramping, false urges, nausea, diarrhea, the whole works!! I went to my GP who did blood work and an exam and determined I had a kidney infection on top of all of that. After a couple of days and no improvement, I made and appointment with my GI's nurse, she prescribed me a Prednisone taper, starting at 40mg and tapering down 10mg/ week and Flagyl. I suppose that helped a little, I started feeling somewhat better, I still have some cramping and slight diarrhea but I feel it's manageable, not ideal, but livable. I finished the Flagyl Rx and am down to 5mg of prednisone daily but I still feel icky. My GP has done blood work and said I am more anemic than she has seen me in the past but just to get extra rest and drink lot's of fluids.
My GI has now prescribed me Humira, it's sitting in my fridge now but I just feel so lost, like I'm not getting the answers I need as to what is happening and going on with my body. Like what does remission feel like? Is Humira really necessary at this point? Why do all of my joints hurt? why am I sooooo tired all the time? Every day it seems like there is something new hurting, and I am not a hypochondriac... I had unrelated cancer, surgeries and chemo in 2008 and it was easier to deal with than this Crohn's diagnosis. Getting ready for work in the mornings is the hardest thing ever! When I finally get home I'm so exhausted all I want to do lay around, my husband has been the best, we were just married in 10/2013 so this is not at all how I imagined our first 6 months of marriage!!! UGH!!!
Anyways, I would love to hear some of your advice on how to deal with Crohn's in the very early stages of diagnosis, questions I should be asking my GI ( I have my first appointment with him this week to discuss the Humira and the Crohn's diagnosis) etc. Or if there are other less invasive treatments besides the Humira I should be looking into, (the side effects seem so scary).
Sorry for the novel, believe it or not this is the condensed version! I really look forward to hearing from some of you!! I'm a super hot mess right now!!! Thank you so much for your time!!!!
So, here I am a month and a half after being diagnosed and I feel very lost... I was diagnosed with Crohn's by a GI after a colonoscopy. I was still coming out of sedation when the doctor came in to explain the disease to me. He put me on Sulfasalazine and told me to make an appointment with him in 6 weeks. No other info...
For the 2 weeks following the colonoscopy I was in complete misery. I don't know if the pre-colonoscopy prep threw me into a flare or what happened but I felt like I was dying! Constant cramping, false urges, nausea, diarrhea, the whole works!! I went to my GP who did blood work and an exam and determined I had a kidney infection on top of all of that. After a couple of days and no improvement, I made and appointment with my GI's nurse, she prescribed me a Prednisone taper, starting at 40mg and tapering down 10mg/ week and Flagyl. I suppose that helped a little, I started feeling somewhat better, I still have some cramping and slight diarrhea but I feel it's manageable, not ideal, but livable. I finished the Flagyl Rx and am down to 5mg of prednisone daily but I still feel icky. My GP has done blood work and said I am more anemic than she has seen me in the past but just to get extra rest and drink lot's of fluids.
My GI has now prescribed me Humira, it's sitting in my fridge now but I just feel so lost, like I'm not getting the answers I need as to what is happening and going on with my body. Like what does remission feel like? Is Humira really necessary at this point? Why do all of my joints hurt? why am I sooooo tired all the time? Every day it seems like there is something new hurting, and I am not a hypochondriac... I had unrelated cancer, surgeries and chemo in 2008 and it was easier to deal with than this Crohn's diagnosis. Getting ready for work in the mornings is the hardest thing ever! When I finally get home I'm so exhausted all I want to do lay around, my husband has been the best, we were just married in 10/2013 so this is not at all how I imagined our first 6 months of marriage!!! UGH!!!
Anyways, I would love to hear some of your advice on how to deal with Crohn's in the very early stages of diagnosis, questions I should be asking my GI ( I have my first appointment with him this week to discuss the Humira and the Crohn's diagnosis) etc. Or if there are other less invasive treatments besides the Humira I should be looking into, (the side effects seem so scary).
Sorry for the novel, believe it or not this is the condensed version! I really look forward to hearing from some of you!! I'm a super hot mess right now!!! Thank you so much for your time!!!!