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Kyle's mom

Kyle's mom

Location
Upstate NY
K has had 2 bowel obstructions in the past 8 months. Steroids have cleared inflammation, colonoscopy an MRE were normal. K has been on Remicade and methotrexate for some time now. In my opinion the Remicade is not working but GI is only increasing dose. What are everyone's thoughts?
 
Brian'sMom

Brian'sMom

Location
Midwest
In our experience the GI always increases dose or time inbetween etc before changing meds. They told us they are told over and over not to give up too soon on a med because then you cross one off the list
 
my little penguin

my little penguin

Moderator
Staff member
Same here DS needed a higher dose and shorter frequency for remicade to keep working for him.
Humira same thing higher dose was needed .
Good luck
 
Farmwife

Farmwife

Yes, same thing. Give it more time, increase dose and hopefully it will help.:hug:
The hard part for me is the waiting.:ymad:
 
Maya142

Maya142

Moderator
Staff member
Same as above - M is on a very high dose of Remicade every 4 weeks.
Have they done the antibodies test for Remicade?
Waiting is the absolute worst!
 
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