I was diagnosed with Crohns in 1997, as well as primary sclerosing cholangitis, which affects my liver. I've been told PSC is a rare complication of Crohns. Between the two, it seems to me that the liver problem is more scary. I get strictures in my bile ducts that result in the need for balloon dilutions by ERCP and my liver enzymes are always high. I frequently get liver attacks that are quite painful. I hate reading about it because it almost always ends with "high likelihood of liver transplant eventually". I worry more about my liver issues eventually taking me out than the crohns.
I don't know a single other person with this liver complication so I guess it would just be nice to connect with someone who is going through the same thing. Are any of you out there?
I don't know a single other person with this liver complication so I guess it would just be nice to connect with someone who is going through the same thing. Are any of you out there?