05-14-2014, 01:00 PM   #1
Andy1982
 
Join Date: May 2014
Location: Dundee, United Kingdom
Modulen ibd

Hi I was wondering if anyone has had experience with modulen.
My GP has given me some to try along with a low fibre diet but I'm not sure how to mix it up as he never gave instructions with it.
I've only got to have 500 calories and see how I am.

Thanks
05-14-2014, 02:07 PM   #2
Ands
Senior Member
 
Ands's Avatar
 
Join Date: Aug 2012
Location: Somerset, UK
My son had modulen for 6 weeks exclusive. I used to mix it up enough for one day at a time and keep in fridge until needed. He started with it through ng tube then went on to drink it. Drinking it, it was best straight from the fridge cold! You can add crusha mix to it to help the taste.

Hope it helps. Xx
__________________
.................................................. .............................
Son Joseph diagnosed July 2012 (aged 10)
Crohn's: oesophageal, ileal, oral and perianal disease
6 week exclusive modulen
8 weeks predisolone
2 weeks azathioprine - stopped after reaction
6-MP 50mg - stopped June 2014 (after 18 months)
Currently on:
Sennoside 18ml daily
Multi Vitamin
Omeprazole 10mg
Prochlorperazine 2 x 5mg
Predisolone as a mouth-wash (as and when needed)
05-14-2014, 02:41 PM   #3
Andy1982
 
Join Date: May 2014
Location: Dundee, United Kingdom
Thanks..my doc just wants me to try 500 calories a day.how many scoops would that be?sorry I got no directions with it on how to use it,not sure how much to add to water.
05-14-2014, 02:58 PM   #4
Ands
Senior Member
 
Ands's Avatar
 
Join Date: Aug 2012
Location: Somerset, UK
Follow thus link, it should help...

http://www.nestlehealthscience.co.uk...ulen%20ibd.pdf

Ands
05-14-2014, 04:45 PM   #5
Precious ones
 
Join Date: Apr 2014
Location: Coventry, United Kingdom
Andy1982 - Hi, my son is currently on his 7th week of modulen, I tend to make up the whole days worth in one go (8 scoops to 250ml cooled boiled water), I think 250ml provides approx 300 calories.

Ands - my son is also 10 and has been on azathioprine for 4 weeks. Can you tell me what the reaction was to it as I am not sure my son is tolerating it that well either? Thanks
05-14-2014, 07:04 PM   #6
Ands
Senior Member
 
Ands's Avatar
 
Join Date: Aug 2012
Location: Somerset, UK
Precious Ones, J started to have a nasty rash and was really itchy. He was swapped to 6mp and these symptoms stopped. He still has extreme daily fatigue which we believe is probably due to the medication but the plan is stay on it until he is through puberty, at least. He will be 13 at the end of August.
05-15-2014, 01:14 AM   #7
Andy1982
 
Join Date: May 2014
Location: Dundee, United Kingdom
I was the same on azathioprine my hands went all red and blotchy so I'm on mercaptopurine now.
Reply

Thread Tools


All times are GMT -5. The time now is 04:14 PM.
Copyright 2006-2017 Crohnsforum.com