05-24-2014, 04:22 AM   #1
Join Date: May 2014
Location: United Kingdom

Ive come across this website many times when I had questions about my health and its been really interesting to see just how many things are attributable to my Crohn's Disease. I thought id join and share my own story, but I seem to have had a much easier time than some of you!

Now 21, I was diagnosed in 2007 aged 15. About a year before that it all started, at first they had no idea what was wrong with me, my main symptoms were tiredness, all the time, I would get home from school and just sleep. I would occasionally have bleeding from behind when I went to the loo, but not always. My mother took me to my GP who decided I had Iron Deficiency Anaemia and gave me iron supplements to take. That really made it worse, I have never had such terrible abdominal pains in all my life! In the end the pain became so bad I went to A&E and I was admitted at first to my local hospital in Wales, where they did a Barium X-ray study, and then to Alder Hey Children's Hospital in Liverpool. I remember my time at alder hey very fondly, they go out of their way to make it nice for kids, even though I was almost 15 at the time!

They did a colonoscopy and a gastroscopy and it found I had granulomas consistent with Illeo-caecal Crohn's. They started me on Modulen IBD, which I remained on for 6 weeks, a no solid food diet. I eventually started taking Azathioprine 100mg a day too. This put me in complete clinical remission, and I have more or less been fine since. I occasionally have abdominal pain and I have had two more episodes of my 6 week Modulen diet, but everything else has been fine! I consider myself very lucky to not need to be on any medication at the moment

I guess you could say I found it quite interesting at the time, and so did science A-Levels and I'm now a third year Medical Student at Liverpool University, ironically currently on placement at the same children's hospital where I was diagnosed... very nostalgic indeed!

So in conclusion I look forward to getting involved with the forum, I think its such a fantastic idea that like minded people can share experiences
05-28-2014, 05:52 PM   #2
Jmrogers4's Avatar
Join Date: Jun 2012
Location: Boise, Idaho

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Welcome planetconwy

My husband has also found remission with azathioprine, sadly it did not work as well for my son and we had to move onto remicade which has worked wonders for him. He will be 15 in July.

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
05-28-2014, 06:02 PM   #3
nogutsnoglory's Avatar
Join Date: Sep 2009
Location: New York

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Welcome and I'm so glad you decided to join us and that you are in remission.

I know you are still in med school but you might be interested in our healthcare workers with IBD support group. http://www.crohnsforum.com/showthread.php?t=60004
05-29-2014, 06:01 AM   #4
Super Moderator
DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
Hi planetconwy and

Sorry you had to find your way but so fab to hear you are doing well. Long may it stay that way!

Well done on your schooling and best of luck with medical studies. Now, how can I not ask…any chance you will specialise in Gastroenterology?

Good luck and welcome aboard!

Dusty. xxx
Mum of 2 kids with Crohn's.
05-29-2014, 06:09 AM   #5
Forum Monitor
Trysha's Avatar
Join Date: Aug 2009

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Hello planetconwy
Dusty has posed a hefty question for you---will you specialise in GI or perhaps you may lean toward pediatrics.
One day you will know as your medical curriculum advances.
It is really great to hear of your crohn's almost in remission--it is a rocky road as you have discovered.
Wishing you every success in your chosen career--- we are in need of good gastroenterologists---
Hugs and best wishes
05-29-2014, 01:24 PM   #6
Senior Member
Join Date: May 2014
Location: United Kingdom

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So happy to hear about your remission, long may it last. I am on the beginning stages and whilst I'm not in the medical profession I did take science A-levels and have a degree in Psychology. I've also found the science behind my condition interesting and aim to try and continue education about my condition in order to be able to advocate for myself.

Best of luck with your placement and as a Brit I look forward to you becoming a fully fledged PhD to help us all out.
Diagnosed May 2014
Jul 2014 Blockage caused by flare up
Sept 2014 Finished 3 Weeks of EEN. Started LOFFLEX diet
Mid-Sept 2014 Another blockage
Oct 2014 Started Infliximab

Current Medications:
Infliximab Infusions (Remicade), Loading doses
Azathioprine (100mg)
Pentasa (4g)
Adcal-D3 (1g)
Ferrous Fumarate (420mg)
05-31-2014, 04:25 PM   #7
KyleB's Avatar
Join Date: May 2014

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Welcome to the forum!
My small story

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