Hi all,
Had crohns since about 16,1978,for 5 years told my doctor in alot pain,said was all in my head,till i got rushed to hospitol.
He later got removed as a doctor,was down to 6 stone,had to have operation,50 50 chance live or die,lumps all over stomach.
To put it mildly the next 2 years was hell on earth,my wife gave up her modelling to look after me,most would have left.
Fast forward 5 years,suddenly stoped takeing everything,steriods ,which made me like hulk.i had 10 years off mild pain.
Then ,i still wonder if i had kept takeing the stuff wouldnt b in such a state now??,but i wouldnt give up those 10 happy years i had med free.
Now i live in small fishing village in england,cannot work.
Ive had every operation going,my stomach is like a train line the amount scars,ive had bag,then year later removed.too many ops to list hear.
Now only thing keeps me alive is my daughter,i am on humura,been told if need any more ops be last,ie tube in neck and fed through a tube food!!!.
Told wife"same one been with me though it all.if i had to have that i be swinging from a tree.so depressed big time and v angry.
Quick history,was punk in 1976 to 1981,with same girl,used live with boy george b4 culture club,been in bob dylan film,and alot tv stuff.Used to self pierce neck eyebrows ect LONG b4 became fashionable.now i live small village 2 castles 7 beaches,sorta semi retired.
Have alot pics but to big to post here for some reason,ive had so many drugs,i got sick being guinea pig,and just stoped,now on humura,other stuff i was on made cuts appear all over my body and bleed,and my skin turn scaly,i called it my mouse dna hell,as part of the drug was made up of mouse dna,like humira is human dna.
Ps i can take alot pain,coverd in tats head to toe,but i refuse painkillers,for me hot water bottle RULES!.
Had crohns since about 16,1978,for 5 years told my doctor in alot pain,said was all in my head,till i got rushed to hospitol.
He later got removed as a doctor,was down to 6 stone,had to have operation,50 50 chance live or die,lumps all over stomach.
To put it mildly the next 2 years was hell on earth,my wife gave up her modelling to look after me,most would have left.
Fast forward 5 years,suddenly stoped takeing everything,steriods ,which made me like hulk.i had 10 years off mild pain.
Then ,i still wonder if i had kept takeing the stuff wouldnt b in such a state now??,but i wouldnt give up those 10 happy years i had med free.
Now i live in small fishing village in england,cannot work.
Ive had every operation going,my stomach is like a train line the amount scars,ive had bag,then year later removed.too many ops to list hear.
Now only thing keeps me alive is my daughter,i am on humura,been told if need any more ops be last,ie tube in neck and fed through a tube food!!!.
Told wife"same one been with me though it all.if i had to have that i be swinging from a tree.so depressed big time and v angry.
Quick history,was punk in 1976 to 1981,with same girl,used live with boy george b4 culture club,been in bob dylan film,and alot tv stuff.Used to self pierce neck eyebrows ect LONG b4 became fashionable.now i live small village 2 castles 7 beaches,sorta semi retired.
Have alot pics but to big to post here for some reason,ive had so many drugs,i got sick being guinea pig,and just stoped,now on humura,other stuff i was on made cuts appear all over my body and bleed,and my skin turn scaly,i called it my mouse dna hell,as part of the drug was made up of mouse dna,like humira is human dna.
Ps i can take alot pain,coverd in tats head to toe,but i refuse painkillers,for me hot water bottle RULES!.
.