Crohn's Disease Forum » Extra Intestinal Manifestations » Wasn't to sure where to post, but...

06-09-2014, 01:12 PM   #1
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HorseLover!!'s Avatar
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Location: Penryn, Cornwall UK

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Wasn't to sure where to post, but...

I have an MRI coming up for Pelvis SIJ-Sacro-Illiac Joint Dysfunction/Sprain . My doctor thinks that it is possible that I might have it after telling him that I have really painful lower back and hips the pain travels down to my knees as well, it effects me when I sit down, move around. I cried at my last appointment because of this and because my Crohn's isn't behaving itself .

Does anyone else have this??

Had my first Colonoscopy and Endoscopy at age 2 1/2 years old

Diagnosed with Crohn's in 1998 when I turned 3

19 Years and counting with Crohn's!

Previous: Prednisolone and Pentasa slow release, Had tube feeding at age 3, Azathioprine

Currently in a flare but not taking any medication because doctor hasn't bothered to prescribe anything

My HORSE is not just a HORSE, he is my SANITY, my HAPPINESS, my THERAPIST and my BEST FRIEND

06-09-2014, 03:28 PM   #2
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DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
Unfortunately this is not uncommon HorseLover so you will find you are far from alone with this type of pain.

Both of my kids complain of lower back pain at times and I do think they both have SI joint issues but it does come and go and at present it hasnít seemed to plague them for quite some time.

These type of spinal issues do run independently of your Crohnís but I think when flaring it does exacerbate things.

Good luck with the tests hun and I hope you are soon feeling better.

Dusty. xxx
Mum of 2 kids with Crohn's.
06-14-2014, 05:28 AM   #3
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nitty's Avatar
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Location: United Kingdom

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I have this, too. The MRI didn't show anything, but I gather that that is often the case. I have also had scans to rule out any gynae problems as it was much worse at different times of the month. I am now waiting to see a physio to check that my (self)diagnosis is right and to find out whether I should be doing exercises to mobilise that area or to protect it. I have started going to a yoga class, but I am still working what exercises help and what just puts me in pain for the rest of the day.

I have found some useful exercises for SI joint pain on youtube. One that particularly helps me is simply lying on my back (floor or bed/sofa) with knees bent up, then tipping my pelvis upwards as far as possible and clenching buttock muscles (keep lower ribs/waist on the floor). I hold this position for about ten seconds then relax, and repeat it a couple of times. It's only temporary relief, but I also find that if I do it when I get into bed at night I have a much more comfortable nights sleep. I'm not sure if it just puts the two sides of the SI joint back into the right position.

I'm now also having problems with tendonitis which has stopped me using my left arm normally and I am wondering if that explains the pain in my knees as I don't think that is 'bony' pain. I don't know whether it's the Crohn's causing this or the drugs - caught between a rock and a hard place!!

Remember, if the scan shows nothing, it doesn't mean you don't have it. From what I've read, the only way to definitely diagnose SI joint dysfunction is to inject anaesthetic into the joint and if the pain goes away then that's where the problem is.

Good luck!

Crohn's Disease Forum » Extra Intestinal Manifestations » Wasn't to sure where to post, but...
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