Crohn's Disease Forum » Treatment » Humira/Adalimumab » Humira Club Support Group


 
07-29-2017, 08:09 AM   #3301
my little penguin
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If it's the pen(auto injector )
They make a loud click when you hit the button
We use the syringes which are much easier to control the rate of the medicine going in
It does burn (not in the U.K. Though they have the newer formula )
Waiting patiently for that in the US

Tiredness is a given
It's a sign the med is working
Some get a rash as the injection site
Ds has had that more than once
But no issues
You can ice before and after
You may also see a small bruise - depends on where you inject
Again not an issue
Good luck
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08-07-2017, 11:22 AM   #3302
aweitzm1
 
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I am getting my Humira today and my nurse comes tomorrow to do the first injections with me. I am nervous about it but hope it works.

I talked to my dr. today and I have inflammation and colitis but not strictures. She put me at moderate right now based on my colonoscopy and endoscopy.

I feel lucky as my symptoms have been mild to moderate for the past few weeks. Only one major flareup. It took so long for me to be diagnosed as I had not the usual symptoms and everyone put it that I was just an anxiety ridden person and that was causing my acid reflux and bloating.

Additionally, I am lucky as right now I do not have an issue with foods. I seem to be able to eat anything when I am not nauseous and can actually eat. The nausea comes and goes as does the bloating and it does not matter what I eat it is still there.

I have come to realize that I need to take each day and live it to the fullest as my symptoms may get worse but hopefully better.
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Dx 7/2017
Humira 8/2017
Effexor 4/2017
Ambilify 6/2017
Klonopin 2 mg as needed 2/2015
Liquid Tumeric
Calcium 7/2017
B12 7/2017
08-07-2017, 11:32 AM   #3303
ronroush7
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I hope it gives you remission ,aweitzm

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Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.
08-07-2017, 06:58 PM   #3304
Furrydogmom
 
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I am getting my Humira today and my nurse comes tomorrow to do the first injections with me. I am nervous about it but hope it works.

I talked to my dr. today and I have inflammation and colitis but not strictures. She put me at moderate right now based on my colonoscopy and endoscopy.

I feel lucky as my symptoms have been mild to moderate for the past few weeks. Only one major flareup. It took so long for me to be diagnosed as I had not the usual symptoms and everyone put it that I was just an anxiety ridden person and that was causing my acid reflux and bloating.

Additionally, I am lucky as right now I do not have an issue with foods. I seem to be able to eat anything when I am not nauseous and can actually eat. The nausea comes and goes as does the bloating and it does not matter what I eat it is still there.

I have come to realize that I need to take each day and live it to the fullest as my symptoms may get worse but hopefully better.

So, how are you doing? Tired? Relieved? How do you feel about doing the injections by yourself now?

My blood work finally came back (huge Quest screwup) so I'm hoping to start next week. Fingers crossed!
08-07-2017, 07:29 PM   #3305
aweitzm1
 
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So, how are you doing? Tired? Relieved? How do you feel about doing the injections by yourself now?

My blood work finally came back (huge Quest screwup) so I'm hoping to start next week. Fingers crossed!
I actually start tomorrow with the Four injections I will definitely let you know. Hoping all goes well.
08-17-2017, 12:26 PM   #3306
Furrydogmom
 
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Started last Friday and I already feel some improvement. Is that possible or do you think it's psychological? I'm ok with either...
08-17-2017, 12:45 PM   #3307
aweitzm1
 
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Glad you are feeling better.
08-21-2017, 06:24 AM   #3308
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Anyone had indigestion /acid reflux as a side effect? I started humira beginning of June and a month later started having really bad indigestion and acid reflux, which I never really had an issue before. Anyone?
04-28-2018, 09:34 PM   #3309
Lynda Lynda
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Whoa, last Humira post here was 2017 ❓
Is there another "Humira" thread ❔

Recently I have watched YouTube videos of people injecting Humira with syringes as well as the "pens." 🙁 Ouch.

Well, my Humira Nurse Ambassador ( yes, that is what she is called ) will be at my apartment on Monday to explain everything to me. I am more worried about the cost than the injections right now.💸

I will have to be a strong advocate for myself to try to get financial assistance for this drug. I live on a fixed-income.... Social Security Disability.

Does everyone get prednisone first then move on to a biologic later ?
My doctor is going right to the biologic first.
I was just diagnosed with Crohns. ☹

Have a good weekend. 🐼
04-28-2018, 09:54 PM   #3310
ronroush7
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Lynda, there is a program that will help with the payment and then you have to only pay five dollars each time.
04-28-2018, 10:49 PM   #3311
Lynda Lynda
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Lynda, there is a program that will help with the payment and then you have to only pay five dollars each time.
Thanks !🌻

I will ask my "Humira Nurse Ambassador" about that. I do not even know if my health insurance company is going to approve this drug for me yet. The Nurse and I will go over that process. A Humira prescription requires a Pre-Authorization from my Health Insurance Company. 😕

Humira can keep the cost high because they hold the patent, so no generic for Humira can be made. 💊

🙂
05-02-2018, 01:51 AM   #3312
Lynda Lynda
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Oh, Humira lady and my doctor helping me to apply to a foundation for free Humira.
Take Care.
05-08-2018, 07:13 PM   #3313
#2asap
 
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Join Date: Sep 2009
Location: denver, Colorado

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I wish to join the Humira Club.
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1996 Crohns Colitus diagnosis 1996 small bowel resection. Osteonecrosis both hips replaced 1997 & 1998.Tried everything. Now on remicade
05-09-2018, 02:36 PM   #3314
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Hello Everyone,
I had my first 4 shot loading doses yesterday and it went pretty well. Patty, the infusion nurse was awesome. She calmly told me not to tighten up and her soothing voice worked. It was far from pleasant but not as bad as I thought would be.

BTW: Canada and some other countries now have the non-stinging shots without the burning citric acid. The USA is slower to do this due to FDA requirements, which are frustrating, but I think somewhat good as drugs get a lot more research before they're released on the public.

I did all 4 in my thighs. My tummy is swollen and tender from the Prednisone. On the sidelines for nearly 8 months, my once sculpted by bicycling legs are now chicken legs with a lot of loose skin, which may have helped the pain factor. She did the first one and I did the last three. The Humira rep was there and I got a take home kit with a talking needless pen to practice with in case my brain fogged mind forgets in two weeks.

I did feel like Hell before I went to bed last night. I had a rough morning yesterday. I woke up late and had to rush to get a pressure valve repaired in order to get the sprinkler system working so it could be aerated and fertilized. When I turned the water on it shot ten feet in the air, so I had to fix it. Prednisone makes me crazy and I had a big shot of angry adrenaline, which helped me get it done fast but ruined me afterwords when I crashed. So that weakening of my body may have made the reaction to 160 mgs harder to take.

I'm l am looking forward to success and getting to what seems to be so ellusive, remission.

Last edited by thike1966; 05-09-2018 at 02:54 PM.
05-09-2018, 02:46 PM   #3315
Lynda Lynda
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If it takes Humira 6 months to work, then I won't be eating solid food until next year. I am starving.
05-09-2018, 02:58 PM   #3316
thike1966
 
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If it takes Humira 6 months to work, then I won't be eating solid food until next year. I am starving.
Hopefully it works quicker, some people feel results in the first few weeks and sometimes days. So I will cross my fingers for us both getting quick results.
05-09-2018, 06:50 PM   #3317
#2asap
 
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best of luck
05-09-2018, 09:19 PM   #3318
thike1966
 
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Join Date: Apr 2018
Location: CENTENNIAL, Colorado

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I wish to join the Humira Club.
My GI doctor told me it is common protocol after failing Remicade to go to Humira. Humira has human derived antibodies, hence the name. Remicade has antibodies derived from mice, which I had an allergic reaction to. He said it will likely work for at least a year. He wants me on Stellara, but because it cost $30,000 to $70,000 a year, it is hard to get approved before failing 2 other treatments.

Most of the treatments have a 60% chance of working, it's somewhat of a roulette wheel. I hope we all get the ball to land on a winner as soon was possible.

If your doctor puts you on Humira, here is the contact information for the Humira Complete program, which is at no cost to patients.

800-448-6472 or visit Humira.com

Good Luck
05-10-2018, 05:31 PM   #3319
Lynda Lynda
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My mind is just spinning around in circles this afternoon. So many unanswered questions about this Humira. My health insurance company, my application for assistance, how long these processes take and are there any added costs that I have to pay. I see my GI tomorrow, he will fill out his form regarding my Humira dosage and send that form to whoever needs it. And I will talk to my Humira Nurse Ambassador on the phone tomorrow too.
I'm tired. 102 here today. And I am starving for real food.
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