Crohn's Disease Forum » Support Forum » IBD and Mental Health Support Group


 
04-25-2016, 10:05 PM   #31
Ann Morgan
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I've found having people to talk to, some sort of support network, is useful.
I also use https://www.moodscope.com/ to keep track of my mood. It hasn't necessarily helped me feel that much better, but it gives me perspective, and helps me understand the details of what's going on with my mood a little better.
I've also started checking out http://www.depressiontribe.com/ as well, as a forum for depression related issues. I've had a couple of good responses there from what little I posted a couple of months ago.
I was using depression tribe for a while, but then I got off of that website. Unfortunately the one or two "bad" people using the website as their own little playground to toy with people's minds and emotions ruin it for the sincere participants trying to get support and understanding.
04-26-2016, 07:33 AM   #32
NeverDull
 
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Since I have been dealing with both problems - CD and MD since my late teens. Now 64, I have tried many ways to navigate the unexpected ups and downs of both.
Menopause caused a major breakdown and severe crisis, and have been on meds ever since. They help a lot, once you have found the right mix for you.
I don't recommend websites in general for support, especially when you are in a fragile state and need kindness and tolerance.
Seems there are always a few well established members there who make it their domain, and you are at their mercy.
Best to try one on one support on the internet. That's what I'm doing now, and it is truly wonderful.
Try your national association for Crohn's disease for this type of program. I can guarantee nobody will play mind games or make you feel worse.
Good luck.
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Bilingual French Canadian, Northern Ontario
64 years old
Diagnosed with Crohn's 1970
Non responsive to any IBD drugs.
Permanent Ileostomy Surgery 1992
Major Depression Diagnosed 2001
Stoma hernia 2010
Married 22 years, 2 dogs.
04-26-2016, 01:14 PM   #33
Spooky1
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I hit major issues with my menopause too. I also had to contend with my older sisters sudden onset menopause as she had aggressive cancer. My dad had cancer at exactly the same time and mum had strokes leaving her with vascular dementia. What a nightmare four years. I also had to take meds and i'm still trying to come out the other side.
04-26-2016, 01:54 PM   #34
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Spooky life is terrible like that, sends you a bunch of very stressful situations at the same time. Aging is not easy either. Hang in there.
05-23-2016, 05:02 PM   #35
Ann Morgan
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I have been through a lot the past 11 years and I honestly never thought I had the coping skills to get through all of the things I have had to deal with, but obviously I must have because I am still here and breathing and thinking and functioning.

I had a really bad mental breakdown in 2007. I was in the psychiatric hospital. After that I saw a psychiatrist and was prescribed psychiatric medications, but I never really came out of the "fog" that I was living with in my brain. I also had no aftercare at that time. But in October 2013 I was hospitalized again and I received a proper diagnosis and a completely different "cocktail" of psychiatric medications. And I went to an aftercare program that really helped me. I also qualified for a program here and I have available to me a Critical Care Coordinator, a Nurse, a Psychiatrist and some places where I can attend to go to classes and to socialize. This time I have come out of my "fog" and I am happier and functioning better.

I was unable to read books for quite a while, due to my loss of concentration and focus and memory. But a miracle happened early this year, when I actually read an entire paperback novel. I have read 14 books during the past 4 months. Like I said, it is a miracle and I finally have something back that I used to enjoy so much. Add that to the 30 pounds I have lost this year and it appears my year is starting off to a great start. : - )
05-23-2016, 05:36 PM   #36
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Thanks Ann for your candid story and the good outcome which finally happened for you. I'm so glad.
My one on one support for the CD is working well too, makes a huge difference in my overall well being and flexibility to stress.
I think my message is never give up trying to all. :-)
08-30-2016, 08:41 PM   #37
Ann Morgan
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There is a local Crohns/Ulcerative Colitis Support Group in the city I live in. I have never gone to one of their meeting. Has anyone attended a support group like this ?
09-08-2016, 03:06 AM   #38
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Thanks for sharing about your mental health problems. You know you are not alone but many others don't share this aspect of our diseases. I have been in therapy for the last 5 years. While I didn't need to go into a hospital my Internist was making me come in to see her monthly until I found a good therapist and psychiatrist. It happened after my colonectomy for UC pan colon and diverticulitis. I was in the hospital 3 times longer than expected. It was hell.

Our guts really are our 2nd brains as the colon helps in production of serotonin, which the lack of brings on depression. I was diagnosed with major depression disorder and PTSD along with generalized anxiety disorder. I had EMDR treatment for PTSD and for that we had to go back to the first trauma in my life and that was way back to my childhood and abuse by my mother after my parents divorced. The surgery didn't actually cause it but it tipped the scale as to how much trauma I guess I could deal with in my life.

I know what you mean about brain fog, not being able to read a book and you have helped me. I know I can get better but it has been a struggle. I first had a j-pouch formed inside when my colon was removed. It never worked as it should. Without going into all that was wrong, a lot of problems occurred and my GI at the Mayo Clinic referred me to a surgeon there and we all met deciding the j-pouch had to be removed. I have had 5 surgeries for this UC related problems and had had 2 other abdominal surgeries before then.

I am doing better after the removal but am still in therapy and seeing a psychiatrist who prescribes my medications. People need to know that we can't just talk ourselves out of mental illness. Chronic disease and resulting chronic pain wears us down. I have not given up hope but it is difficult. Fortunately our children are adults. I have fibromyalgia and peripheral neuropathy and so on.

So good for you for getting the help you needed and for reading those books!
04-16-2017, 04:05 AM   #39
Juulez
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😎lets get this group going again I think it will help a lot of us I know it will help me! The depression that goes along with this/these diseases is devastating and I know many of you could help me. And I hope I can help you!🤝🌈🏝
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04-17-2017, 02:26 PM   #40
Glockola
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Juulez - I think that's a great idea!

What do you find is the toughest mentally to deal with that triggers your depression and also anxiety?

For me it's just really tough being always tired (want sleep all day), socially isolated and being house bond way too much.

Do you see a good psychiatrist? And are you currently on any medication that you find helpful?
04-17-2017, 02:29 PM   #41
ronroush7
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When I am at my worst, I can weep for no reason.

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04-17-2017, 02:38 PM   #42
Juulez
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Oh I cry all of the time! But I am so lonely and being stuck in the house doesn't help. It's like drs hospital pharmacy home. Couch or bed. I feel like I have no life. Recently my pain has started making me see things thank god for s good psychiatrist. I take Zoloft seroquel ativan trileptal. That's all for psych. Enough huh? Depression sucks sometimes I can't get out of bed shower anything. Oh Crohn's disease I love you...lol
💜Julie
04-17-2017, 02:51 PM   #43
Glockola
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Same here, also stuck in the house days on end. I tend to get really quiet, passive and suicidal almost when things look dark. Rarely cry. Just want to drug myself up and escape reality all together. I do sometime.
Seem like you going through an agonizing period. Hopefully a successful surgery can be done soon.
04-17-2017, 02:56 PM   #44
Glockola
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Being lonely is probably just as dangerous as the disease itself.
We get stuck in our heads all the time. And also being sick with crohns sometimes is pure torture on top of it.
04-21-2017, 11:52 AM   #45
Spooky1
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I also identify with what you are going through. I hate to say this but it's great to know others suffer just like me.
04-21-2017, 05:09 PM   #46
Juulez
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It's nice to know your not the only one! But goodness with as sick as we all get sometimes how can you not have some psych issues! I spend so much time alone in bed in pain that isolates me leaviving depression and I have awful anxiety and scared to go far from home. Sometimes I think I feel better in the hospital with someone to take care of me..and that eases the anxiety a bit but I hate the hospital makes no sense..
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03-24-2018, 10:55 PM   #47
Lynda Lynda
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😎lets get this group going again I think it will help a lot of us I know it will help me! The depression that goes along with this/these diseases is devastating and I know many of you could help me. And I hope I can help you!🤝🌈🏝
Thank you for trying to keep this conversation going. No one has posted here for a year Where's my peeps ! Good Grief, my old Ann Morgan posts from 2 years ago are still here Take Care.
03-25-2018, 12:18 AM   #48
cmack
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I have had generalized anxiety disorder ever since my illness began. I can relate to anyone who feels terribly awkward in public places. I have fears of an accident in public, (haven't we all lost count?) I am currently pushing myself past my comfort zone with too many appointments. My only option is to fast for 24 hrs before I have to be somewhere to minimize chances of troubles. It sucks, but I think it is necessary for me to make improvements and keep toughing it out. Some days it really feels like I should go and hide out in the mountains in a little hermit's cabin. Just me and a couple hound dogs would be perfect. Hey, a guy can dream right?
03-25-2018, 06:56 AM   #49
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Cmack, i starve myself too. It just allows me more confidence if i go out. Any journey is difficult though.

I am still suffering with MH issues. Like many, i just keep it all in. I really don't have anyone to talk to about things either. I'm trying CBD oil without the THC. Sincerely hope it works. I am sleeping a bit better at the moment, that helps a bit.

Lynda, Lynda, are you Ann Morgan? Ha ha, you've changed your name then?
03-25-2018, 12:04 PM   #50
Lynda Lynda
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Yes, the last time I was here I used the name Ann Morgan, but my real name is Lynda and so this time I decided to just use my real name. I had to drive to the grocery store real quick this morning and then back to my apartment without having an accident,so that was a victory. I go to the doctor's office tomorrow. I am really tired, so I am going to go now. Have a good day. PS : Don't read my old posts, they are crazier than the ones I am writing now.
03-31-2018, 03:43 AM   #51
Lynda Lynda
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Since this forum is about IBD and Mental Health I have a recommendation for a website that I have been using since May 2014. It is called www.depressiontribe.com.
Whoa, this was me 4 years ago. Wierd
03-31-2018, 07:11 AM   #52
Spooky1
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I'm trying CBD oil (without the THC) for Crohn's and depression/anxiety/sleeplessness.
03-31-2018, 11:21 AM   #53
Lynda Lynda
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I'm trying CBD oil (without the THC) for Crohn's and depression/anxiety/sleeplessness.
Everyone talks about this oil ? Does a doctor give it to you ?
03-31-2018, 11:57 AM   #54
Spooky1
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No, we can buy it online or at the shops. Helps me sleep so far.
03-31-2018, 12:55 PM   #55
ronroush7
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Sometimes I get ready to do something and turn around and find out i have already done it. Does this happen to anyone else? My father had dementia.
03-31-2018, 01:04 PM   #56
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Some of my medications cause short term memory issues. I have fairly often forgotten small things like that when on them. Gabapentin was particularly bad for me, others have no problems with it.
03-31-2018, 01:08 PM   #57
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I find it shocking that i have been this way for a while now. It embarrasses me even if no one else is around. I do question my senses. You're certainly not alone with this.
04-09-2018, 05:47 PM   #58
Lynda Lynda
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Sometimes I get ready to do something and turn around and find out i have already done it. Does this happen to anyone else? My father had dementia.
This kind of thing happens to me all the time, I walk into my kitchen and don't know why I walked in there! I get sick of doctors or people saying "it's old age" when I am only 57 years old ! My mom's memory was "sharp as a tack" when she was in her 80's. And two days before my dad died he was "all there." Forgetting things happens to everyone. Sending you a
04-09-2018, 06:08 PM   #59
Lynda Lynda
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Oh, yes, medication can put you in a "brain fog." I did not know that for years. I had a Psychiatrist 10 years ago that had me all doped up on strong psyche meds and OMG that dangerous Lunesta sleeping pill. And I was employed at that time and couldn't even function at work. The psychiatrist I was seeing 10 years ago misdiagnosed my condition and so he was giving me drugs that were wrong for me, I was so sick that I didn't know any better to get a second opinion. I wasted 6 years of my life being messed up on those drugs and never getting better. As it so happened changes in my life in 2012 ended up with me discontinuing all my psych meds. Even though I suffered severe isolation after weaning off my meds it was the best thing that could have happened to me. I ended up in the hospital in 2013 and I was properly diagnosed and was given the proper medications, so a lot of bad things had to happen for a good thing to happen. I have been on the same meds for 4 years and regularly see a psychiatrist 4 times a year and that is working out for me just fine. I want to thank the case worker at the hospital for helping me to help save myself because that After Care Program was something that I needed years ago but my health insurance wouldn't cover it. Life is sure weird. When I had a job and I had Aetna Health Insurance the coverage for hospitalization and Aftercare programs and psychiatrists and psychologist was severely limited....that was in 2007. I had to hit rock bottom with no health insurance and no source of income whatsoever to qualify for a program for poor people to get help for their mental health problems. I am rambling again, so I will leave now. Take Care.
04-09-2018, 06:15 PM   #60
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