08-07-2014, 06:27 PM   #1
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Sascot's Avatar
Join Date: Aug 2011
Location: Falkirk, United Kingdom

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Feeling down

Hi all, hope you don't mind a bit of a vent. I am just sitting with my daughter as she had to come get me out of bed because she had a sore stomach and felt sick. Only 2 weeks ago I was at the GP with her with a bad sore tummy worried that it's about the 5th time just this year. Was supposed to do a calprotectin but we've been away on hols. Worry is settling in!
Andrew has been keeping okay but seems a bit down just now. He ate like a horse on holiday but still lost half a pound. Hoping its "just teenage hood ".
Then there's me - still in a lot of pain with my joints, some sore stomachs and now I seem to have developed migraines. Doctors are no further forward and I am so tired of feeling ill and sore!
Rant over. On a good note, Norway is a truly beautiful country - loved our cruise there.
08-07-2014, 06:29 PM   #2
Jmrogers4's Avatar
Glad you had a great trip. Hope it is just a blip for the kids and they feel great soon and you get answers for yourself and soon everyone is healthy.

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues
08-07-2014, 06:46 PM   #3
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

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I'm so sorry to hear all this.
Of course your down any one would be.

I hope things get brighter or at least y'all get some answers soon.

I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
08-07-2014, 06:53 PM   #4
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Niks's Avatar
Join Date: Nov 2012
Location: Swindon, United Kingdom

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Hugs , really hope things pick up for you too, and very soon xx
Daughter 24, 1. Upper GI and colonic dysmotility with viscernal hypersensitivity.
2. Predominant Constipation with slow colonic transit and moderate gastroparesis,
3. Nephrolithiasis
4. Osteoporosis
Sacral Nerve Stimulator fitted Nov 17.

Peristeen Irrigation every day.
Self Catheterisation

Waiting for bowel stimulator!
08-07-2014, 08:29 PM   #5
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CrohnsKidMom's Avatar
Join Date: Mar 2013
Location: (Canada), Nova Scotia

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Sorry to hear this. Your vacation probably seems like it happened a long time ago. Hope things turn around for your family soon.
08-07-2014, 08:47 PM   #6
my little penguin
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Join Date: Apr 2012

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Big hugs hope you can get off the roller coaster ride soon .
DS - -Crohn's -Stelara -mtx
08-07-2014, 08:49 PM   #7
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Clash's Avatar
So sorry to hear this. I hope everything settles soon and they can find some answers for you!HUGS!
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira
08-07-2014, 09:02 PM   #8
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Maya142's Avatar
Really sorry to hear Sascot! Hope your kids feel better soon and you're able to see a rheumatologist !
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18

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