Crohn's Disease Forum » Parents of Kids with IBD » Curious how many families have this,

08-12-2014, 12:32 PM   #1
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kimmidwife's Avatar
Curious how many families have this,

I have suddenly noticed a trend on here. There seems to be a lot of families with one parent has IBS and then they have a child with Crohn's. I am curious to see how many of us there are.
My husband has IBS and my daughter has Crohn's.
Also I am posting an interesting article about IBS,

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
08-12-2014, 01:13 PM   #2
Join Date: May 2014
Location: DFW, Texas

My Support Groups:
I have IBS. Daughter has Crohn's.
08-12-2014, 01:16 PM   #3
Join Date: May 2014
Location: DFW, Texas

My Support Groups:
What is odd - I would have an "attack" maybe once a year, appears to be stress related. Since my daughter's diagnosis, I've had several "lighter" attacks. I chalk it up to the universe reminding me how miserable she is and to try to understand some of her symptoms.
08-12-2014, 01:53 PM   #4
Tesscorm's Avatar
Join Date: Jun 2011
Location: Ontario

My Support Groups:
Husband has IBS, son has crohns.

However, we also have family members, on both sides, with either crohns or UC. If there is a connection, in S's case, the connection could more likely be with those who have IBD???
Tess, mom to S
Diagnosed May 2011

May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil
08-12-2014, 02:07 PM   #5
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dodie74's Avatar
Join Date: Sep 2011
Location: west coast scotland., United Kingdom

My Support Groups:
Husband has crohns, son also. X
08-12-2014, 03:02 PM   #6
Cupkatemom's Avatar
Join Date: Dec 2013
Location: Dallas, Texas

My Support Groups:
My mother had IBS...her granddaughter has Crohn's. My husband is Lactose Intolerant (wonder if there is a connection with that).
Daughter dx Crohn's Dec. 2013
Imuran 75mg
08-12-2014, 03:11 PM   #7
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Johnnysmom's Avatar
Join Date: Oct 2011
Location: Cincinnati, Ohio

My Support Groups:
I have IBS, son has crohn's.
Mom of Johnny
Dx Oct 11 2011 Crohns disease
Prednisone done 12/30/11
6mp 50mg every day
Allopurinol 50mg -discontinued per new G.I. on 11/01/12
Multi Vitamin
Vitamin D3 1000mg
08-12-2014, 04:12 PM   #8
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Join Date: May 2014
My son's grandmother has IBS. My son has Crohn's. I do not have IBS or IBD.
08-12-2014, 04:53 PM   #9
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Jenn's Avatar
Join Date: Jul 2011
Location: San Diego, California
I'd heard this recently too. Both my husband and I have IBS and one of two sons has Crohn's
Jennifer ~ son dx at age 8, Sep 2010
currently on Humira, Feb 2012+, MTX (25mg) Aug 2017+, folic acid
past use: 6mp for Sep 2010-Apr 2011 (not effective enough), then Remicade April 2011-Dec 2011 (built antibodies); additional 6MP Aug 2012-Sep 2013; Periactin for appetite Sep 2010-Sep 2013
other: Centrum chewable multi; calcium-vitD;
Derma-Smoothe for psoriasis rashes; Alrex, Zaditor eye drops for vernal conjunctivitis; history of asthma, ear infections
08-12-2014, 05:44 PM   #10
Catherine's Avatar
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
I have IBS, lactose and gluten intolerance. One of my 3 daughter has crohn's.
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
08-12-2014, 07:43 PM   #11
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Clash's Avatar
I was always told I had IBS because tests never show anything but GI now thinks I may have damaged or defective vagus nerves causing GI issues and Postural orthostatic tachycardia syndrome symptoms...who knows.

So, possible IBS for me, CD for son and now GI issues being investigated for daughter.

You should make this a poll!
Mom to
C age 19
dx March 2012 CD

CURRENT MEDS: MTX injections, Stelara

Dx May 2014: JSpA
8/2014 ileocecectomy
9/2017 G tube

PAST MEDS: remicade, oral mtx, humira

Last edited by Clash; 08-13-2014 at 11:01 AM.
08-12-2014, 08:31 PM   #12
Emily's mom
Emily's mom's Avatar
Join Date: Mar 2014
Location: Pawleys Island, SC

My Support Groups:
Neither my husband or I have any sort of IBD. I have no knowledge of any family members on my side or my husband's side with any autoimmune diseases.
08-12-2014, 08:45 PM   #13
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

My Support Groups:
None for us but son (non-ibd kid) as issues classified as IBS.
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
08-12-2014, 09:26 PM   #14
Join Date: Feb 2014

My Support Groups:
My husband's maternal aunt had either Crohn's or Colitis - don't know if they ever had a definitive diagnosis and she has been dead for over 25 years. Hubby has not been diagnosed with anything but definitely has stomach "issues" and our son has Crohn's.
08-13-2014, 09:26 AM   #15
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greypup's Avatar
Join Date: Apr 2013
Location: St. Louis, MO

My Support Groups:
Other than my husband's celiac diagnosis, we have no IBS in the family, either side.
Mom to 18 yr old daughter, M, dx'd Crohn's April 2013
TI resection surgery June 2013
supplements=Vit D, L-Glutamine, Omega D, Probiotic, Curcumin
08-13-2014, 10:39 AM   #16
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Maya142's Avatar
One grandmother has IBS, the other grandmother IBD and her son (my husband) has AS, so I'm guessing all of this just runs in the family.
M has IBD and IBS (and AS).
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
08-13-2014, 11:22 AM   #17
Senior Member
CrohnsKidMom's Avatar
Join Date: Mar 2013
Location: (Canada), Nova Scotia

My Support Groups:
I have not been dx'd, but all signs seem to indicate I have IBS. There are a lot of bowel issues in both my mom's and dad's families, but no one formally dx'd with IBS or IBD. There is also RA in my mom's side of the family. No other auto-immune diseases that I am aware of. No bowel issues or auto-immune diseases on either side of my husband's families, other than common allergies and asthma. We have 2 sons, one with Crohn's.
08-14-2014, 03:42 PM   #18
Senior Member
Ands's Avatar
Join Date: Aug 2012
Location: Somerset, UK

My Support Groups:
One son with Crohns, I have Coeliac, type 1 diabetes, underactive thyroid. My Mum has Vasculitis and underactive thyroid and my late Nan had vitiligo. Lots of auto-ammune issues here!!!!!!
.................................................. .............................
Son Joseph diagnosed July 2012 (aged 10)
Crohn's: oesophageal, ileal, oral and perianal disease
6 week exclusive modulen
8 weeks predisolone
2 weeks azathioprine - stopped after reaction
6-MP 50mg - stopped June 2014 (after 18 months)
Currently on:
Sennoside 18ml daily
Multi Vitamin
Omeprazole 10mg
Prochlorperazine 2 x 5mg
Predisolone as a mouth-wash (as and when needed)

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