She would need have cdai index of 300. Current index approx. 7I am confused - if she is flaring on Aza
Does she have to have damage before they would switch her??
I believe the GI will test aza levels with the hope of increase further. Although she is currently on 2.7 per kg.I just wanted to send hugs your way! If she doesn't qualify yet for biologics then do you just adjust current med or switch to another immunosuppressant?
What are the symptoms of inflammatory back pain?
Typically, inflammatory back pain:
Starts before the age of 40 years
Has been present for at least 3 months
Has come on slowly over time
Is worse in the mornings
Causes stiffness in the mornings lasting for at least 30 minutes (stiffness is perhaps best described as the sort of aching you get the day after heavy exercise)
Improves with exercise, and is worse with rest
Improves with anti-inflammatory drugs (e.g. ibuprofen)
Can wake people from sleep, often in the second half of the night
Can often cause pain in the buttocks, but rarely pain shooting down the leg (sciatica)
Sarah how done 3 courses of pred, 2 at 30 mg and 1 at 50mg. I not in flavour of another course of steriods especially when she is symptoms free.But did the doc answer how the steriods /abx would fix the problem long term since both are short term fixes?? Since you know Aza by itself is not enough and steriods/abx are not something one should take long term.
Once you stop either you would be back in the same boat your in now .
I thought they put her on steriods at least two to three times earlier since the Aza was not handling the inflammation by itself.
I feel so frustrated for her.
Budesonide is Entocort, Sarah is not wanting to do steriods. I don't whether we can afford this option. We will if it more likely to be successful. The other options will cost us $6.60 a script. The chemist I use believe it will cost approximately $150 per script.What about Entocort? M was on Entocort for 3 months and had absolutely no side effects.:ybatty!
She told us she will not agree to surgery::confused2: so surgery is not a option. What young adult is going to believe obstruction is a real risk when they have no symptoms?I don’t think that the Mesasal will do diddly squat for her.
Yeah, I see what you mean about the lack of overt symptoms. *sigh*
Okay, so obstruction is a real and ever present threat, she has scarring and the meds are doing nothing…is surgery maybe your best bet?
Dusty. xxx
So hear you on that one!It a nutshell there were more important things to argue about.