New to forum

Hi. Diagnosed with Crohn's over a year now. First time in a support group for it. Saw the new release on the study of remicade. (Someone from this sight posted response, thought I would comment...must sign up first). Makes me think about trying it for the full body pain and inflammation. With the serious possible side effects, not sure if I should wait until things get worse. Look forward to reading what people have posted on is this subject.

Hi there, and welcome. I am new to this forum too. Been reading it for several years now, but just signed myself up. I had been on Remicade for about 1 full year before I developed antibodies. However, it was a wonder drug for me. I would feel immediately better after an infusion. Like I was high on life! Tons of energry, normal bms, ZERO pain, just felt overall awesome. I did hem and haw over starting the drug for some time before I had my first infusion. The side effects would make anyone freaked out. But I do highly recommend it. My cousin has been on Remicade for over 10 years and he still has great success with it. I would give it a try! Don't wait till things get worse, then you may be looking at a course of pred, and who wants that?! LOL. Good luck!

Thanks for the reply. I would not go on the prednisone treatment drugs. I have basically been without treatment. I have many other autoimmune diseases/disorders. Everything overlapping...dr's not knowing what is what and not even knowing if they have given me correct diagnosis on the other stuff. I don't want to have Crohn's (who does) but at least I know one of my diagnosis was correct. I can still deal with the C side effects unless this overall pain/inflammation is part of it. If not, I might concede to taking something. It hurts so bad just to type this. I am glad you got significant relief w/o bad side effects. Where you hospitalized for treatment, and if so, for how long?

Hi ISshot2. Welcome to the forum. Remicade is done every 8 (sometimes 6 or 7) weeks after the loading doses. It is usually done in the hospital or Doctor office as an outpatient. It lasts about 3 to 6 hours depending how slow is done.