09-03-2014, 04:28 PM   #1
JenniferJuniper's Avatar
Join Date: Jul 2014
Location: Pittsburgh, Pennsylvania

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My Son's Poem

This just killed me...

My 13 year old just started his new year in middle school last week and was given a "get to know you" assignment from his English teacher.

Write a 5 word poem or descriptive sentence to describe something they are currently experiencing or going through. Here was my son's descriptive sentence:

Fighting what is inside me.

14 yr old son dx Crohn's 7/14

Severe inflam. in small intestine
Delayed growth & puberty, malnourished, anemic
Remicade & Methotrexate 8/14
Vit D, folic acid, supplemental EN
38 cm of distal ilium removed 7/15

Last edited by JenniferJuniper; 09-03-2014 at 08:42 PM.
09-03-2014, 04:32 PM   #2
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

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Some day your son will write........
I beat this awful disease.
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
09-03-2014, 05:58 PM   #3
my little penguin
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Join Date: Apr 2012

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Big hugs
Its hard when they are dx and dealing with teenager stuff as well.
DS - -Crohn's -Stelara -mtx
09-03-2014, 07:45 PM   #4
Senior Member
Brian'sMom's Avatar
Join Date: Dec 2010
Location: Kansas

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Our kids need a cure! My 5 word sentence. Give your son a hug from me His sentence makes me sad and proud. Kids with this disease are so tough and intellectual and mature beyond their years.
Kathy, Mom of 14 yr old Brian
symptoms 2005, official dx 6/2010

Praying for Remission
Vedolizumab 8-8-14
Ileostomy 3/22/14
Multivitamin,Iron,Vit D

Total EEN 12-10-13 to:TPN 1-29-14 - 4-2-14
Tried:Azathioprine,Pred,Pentasa,Cimzia Bi weekly & MTX 9/2013 to 8/2014, Humira 1/2011-9/2013, w/oral mtx 5 mos in 2013. Remicade: Had allergic reaction Jan 2011 Built up antibodies by 3rd infusion.
Has done round of Flagyl due to abcess 12/10 and 10-21-13 which helped both heal quickly.
09-04-2014, 12:01 PM   #5
Senior Member
Join Date: May 2014
Well, that made me cry. But I do think it's great your son is expressing his feelings.

I must add that it makes me angry that out kids have to deal with IBD. They should be writing about football, parties and other fun stuff. I agree, we need a cure.
09-04-2014, 06:57 PM   #6
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malorymug's Avatar
Join Date: May 2014
Location: DFW, Texas

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If I remember correctly you are newly diagnosed. We were diagnosed last spring and my son wrote about his feelings about Crohn's almost exclusively. I think it was very therapeutic for him as his processed and grieved. His english teacher learned a lot about crohns.This fall I'm seeing a whole different outlook as he writes. And for the first time ever, he is thinking good things about the future and making plans.
Mom to: 15 year old boy
Crohn's in stomach, small intestine, large intestine, and perianal disease
Diagnosed April 2014, at age 13

Currently taking:
Remicade 10mg/kg every 6 wks
Methotrexate 7.5 mg/wk

previous meds:
6mp 50mg
Prednisone 30 mg

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