09-08-2014, 09:48 PM   #1
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Mehita's Avatar
Join Date: Nov 2011
Location: Minnesota

My Support Groups:
Costa Rica?

Who's son went to Costa Rica last year?

DS has an opportunity to go to Costa Rica next summer with band. Looking for advice.
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
09-08-2014, 10:56 PM   #2
Catherine's Avatar
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

My Support Groups:
Was it Tesscorm
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)
09-09-2014, 09:19 AM   #3
Tesscorm's Avatar
Join Date: Jun 2011
Location: Ontario

My Support Groups:
S went to Dominican Republic.

GI advised that we see a travel doctor (possibly same as infectious diseases specialist??) to ask what vaccines S would need and to get back to GI before giving any vaccines. Not sure how it works there but, here, travels docs get paid for each vaccine. This dr recommended a number of vaccines S did not really need (ie unnecessary boosters), so just keep this in mind and check recommendations against previous vaccines. (However, this was the dr that ran tests to check on what S did not have immunity for and we found out S does not have full protection for mumps.)

GI also provided a prescription for antibiotics to be used under specific instructions (ie diarrhea but only if blood also present).

I sent a bunch of Boost shakes with S so that if he wasn't well, he could replace some meals with just shakes. I sent the premade shakes, which are heavy, but powder would be lighter if you know your son would 'make' the shakes (but then you've got to make sure he uses bottled water). Also sent a copy of his hospital record/dx so he could show customs if there was any problem with taking the shakes (there was no issue with the shakes).

Also made sure S had his 'medical card' which lists his dx, meds, supplements and contact info. Came in handy when he dislocated his shoulder, had to go to hospital but couldn't communicate because of language - he gave them the card and it helped.

ID specialist also recommended doxycy... (not sure of spelling) as a preventative for malaria. GI didn't feel it was necessary and felt bug spray would be sufficient but wasn't against it. I opted to not send it because there seem to be links between doxy and crohns.

But, after all this prep, aside from the dislocated shoulder, S had no GI problems at all - he stayed away from fruits/veggies and made sure all food was well cooked (knowing his diet preferences and my instructions, he probably ate pizza, chicken nuggets, fries, etc. all week! But, I figured, in this case, it was probably safer than eating fruits/veggies. )

Thanks that's about it...

I'm sure he'll have a GREAT time!!
Tess, mom to S
Diagnosed May 2011

May-July 2011 - 6 wks Exclusive EN via NG tube - 2000 ml/night, 1 wk IV Flagyl
July 2011-July 2013 - Supplemental EN via NG, 1000 ml/night, 5 nites/wk, Nexium, 40 mg
Feb. 2013-present - Remicade, 5 mg/kg every 6 wks
Supplements: 1-2 Boost shakes, D3 - 2000 IUs, Krill Oil

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