Crohn's Disease Forum » General IBD Discussion » Can Crohn's get worse without you knowing (feeling) it?

09-16-2014, 06:33 PM   #1
Join Date: Mar 2011
Location: San JOse, California
Can Crohn's get worse without you knowing (feeling) it?

Hey everyone,

I was diagnosed in 2007, but am fortunate to have a relatively mild form of crohn's. I avoid only a few foods, but generally eat/drink whatever I want. I rarely have any flare-ups anymore (maybe once a year), and medical marijuana has been a savior for those times, and just a general stress reliever in that I know I have an at-home remedy for flareups, as opposed to before, where the ER was the only source of relief.

My question to others is, can crohn's get worse without you knowing it? I feel like mine has been steady since I was diagnosed. I had a colonoscopy 2 years ago, and my crohn's hadn't moved or increased. Most days, I feel perfectly fine. I noticed that I'm at a lower normal weight now, although I'm not sure exactly when that began happening. I also don't know if that's just me getting older and eating less, or a physiological change brought on my crohn's, or both? I have a very high-deductible insurance, and my salary barely allows me to pay bills, school loans, and live reasonably, so I try to avoid any medical visits as much as possible. I know I should probably get a colonoscopy once a year.

Is it possible crohn's is getting worse without me knowing me?
09-16-2014, 07:19 PM   #2
PsychoJane's Avatar
Join Date: Mar 2011
Location: Quebec

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Unfortunately yes...
I am one of those who gets each and every side effects of treatment so I avoid them like plague. That being said I would dare to say I remain at risk regarding my condition even though I do all in my possible to care for my lifestyle and listen to each and every early alarms. I now have good follow-up but at some point through the history of my disease, I was med-free without any follow up.

The only thing that changed after a while was that I was exhausted..., had frequent headache and lost weight...Everything else looked fine until I broke a fistula open without other warnings or blood test anomalies... Now I know I have to be suspicious of pretty much anything regarding my condition...

It might worth investing in the screening to avoid getting caught by the disease severity if your situation allows it...
Diagnosed UC 1999 then refractory CD.
Past Meds: Prednisone, asacol, cyclosporine, cyclophosphamide, mp6, Humira

Currently taking: Omega-3, D-3, med-free for the time being.
~~Oh! n sorry if what I write seems strange at times, English is not my main language!~~

You'd like to chat and feel facebook would ease this point,
send me a private message and i'll do so =)
09-16-2014, 08:59 PM   #3
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DJW's Avatar
Join Date: Jul 2013
Location: Ontario

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As PsychoJane said, yes.

Inflammation can be present and cause damage to the intestine leading to serious complication without any symptoms.
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:

Living in Ontario with no drug benefits?

Trillium Drug Program:

09-16-2014, 10:33 PM   #4
Catherine's Avatar
Join Date: Jan 2012
Location: Melbourne, Victoria, Australia

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My dd developed a small bowel to small bowel fistula while appearing to be clinical remission.
Mother of Sarah dx aged 16, Jan 2012
DX - CD 1/12, asthma
Small bowel to small bowel fistula

Meds: ), azathioprine 200mg, Mesalazine 1.2g x 2, seretide 250 x 2 (asthma), ventolin (as needed)

Currently no supplements.

Has previously taken Multi B, Caltrate, B12 & Iron

Prednisolone (from 30 mg 01/02/2012 to 17/06/2012, 30mg 24/10/12-28/12/12, 50mg 24/1/13-27/4/13)

Last edited by Catherine; 09-17-2014 at 01:32 AM.
09-16-2014, 11:44 PM   #5
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

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In 2010, I had a resection. My surgeon told me it had been there a while. That was a surprise to me.

Diagnosed in 1990. On Humira, Imuran, Gabapentin, Colestipol, Synthroid, Lialda. Resection in April of 2010. Allergic to Remicade, Penicillin, Flagyl, Doxycycline. Thyroid issues and psoriasis and neuropathy and mild cerebral palsy. Mild arthritis in my lower back.

Crohn's Disease Forum » General IBD Discussion » Can Crohn's get worse without you knowing (feeling) it?
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