10 year old daughter just been diagnosed with IBD

Hi im new to this forum. Just wondering is there any other parents where there 10 year old has ulcerative colitis. This is her third week on steroids and she still feels unwell. She is also on anti inflammatories, iron + vitamin D.

Thanks Meekie

Hi Meekie and welcome.

We have s great group of parents here. Sending both of you my support.

Welcome

Here is the parents group

http://www.crohnsforum.com/forumdisplay.php?f=49

My DS is 10 as well
He was dx three years ago at age 7.

What maintence med is planned ?
Have you started it yet ?
How are you holding up ?

Welcome, my son now 15 was diagnosed at 10 with Crohn's, as MLP says we have a fantastic group of parents here

Hi

She is not due back to clinic till the 9th of January, 2015. Hoping that she will have had an MRI before then to see how much damage has been done. Just wondering is their certain foods that aggravate it?

She is on Galfer Iron 20ml a day, Salazopyrin EN 500 mg 3 a day, Deltacortril enteric 5mg 6 a day+ the vitamin D is 4 drops at 10mg a day.

Thanks

Why are they waiting so long for a follow up?
Typically on the beginning they need to be seen more often .
Also not familiar with the name of the one drug but I assume its a 5-ASA.

Hope the entocort kicks in soon.

Hi, 3 weeks and no important improuvement on prednisone and salazopyrin... I'd call the clinic asap to explain that situation.

Salazopyrin is the other name for sulfasalazine which is a combination of 5-ASA with something else i cant remember for now, usually accepted to be more effective than sole 5-ASA for recto-colitis.

also note salazopyrin can cause some diarrhea, some people are more sensitive to it.