11-04-2014, 04:02 AM   #1
Jimbo-86's Avatar
Join Date: Nov 2014
Location: West Sussex
Proctitis Help??

Hi Everyone,

I really need some advice and help.
I have Crohn's\Colitis and have already had part of my colon removed. After 3 years remission and regular Infliximab infusions every 6 weeks things are starting to go downhill.
My colonoscopy in July diagnosed me with Proctitis low down in my rectum which was causing me loads of pain going to the toilet and also leakage I was told to start take Steroid Suppositories which I did.

We are now in November and 2 months’ worth of Steroid suppositories and 2 Infliximab infusions and still no improvement. I went for a Flexi-Sig on Wednesday and they said it was still badly inflamed with ulceration. Currently I am waiting for an appointment with my consultant to discuss what my options are.

Have any of you had this issues with low down inflammation in your rectum? Would it be worth starting humira maybe?
Tramadol is my friend at the moment but makes me really constipated! I then take lactulose to help which then goes the other way. I feel like I am in a circle here?? Is there any other pain relief that doesn’t constipate you?

Suffered Crohn's Disease since 2003. Had Sub-Total Colostomy in 2007 with Temp Loop ileostomy which I had reversed in 2009.

Currently on 6 weekly infliximab infusions.

Last edited by Jimbo-86; 11-04-2014 at 04:50 AM.
11-04-2014, 04:52 AM   #2
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DJW's Avatar
Join Date: Jul 2013
Location: Ontario

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· Stoma
Hi and welcome.
Sorry I'm not able to offer any help with your questions.
Others will be along.
Sending you my support.
Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:

Living in Ontario with no drug benefits?

Trillium Drug Program:

11-04-2014, 05:27 AM   #3
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nitty's Avatar
Join Date: Dec 2011
Location: United Kingdom

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My Crohn's Colitis started with proctitis - lots of painful trips to the loo with fresh blood, etc. I found 5-ASA suppositories (various brands - Asacol, Pentasa?) helpful for the immediate problem, but it was only a course of Prednisolone that really helped to get on top of it while I was starting on azathioprine.

Good old Sudacrem nappy rash cream also gave relief for any external soreness. I think I survived on a diet of bananas and flapjacks, too! They gave me some energy along with soluble fibre, helpful if your painkillers are bunging you up.
11-04-2014, 06:16 AM   #4
Cross-stitch gal
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Join Date: Dec 2011
Location: Vancouver, Washington

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Hi and welcome! I'm afraid that I'm not going to be much help either. However, I have Ulcerative Proctitis along with Ulcerative Colitis. As in my signature, my 2 main medications are Pentasa & Canasa which are 5ASA medications.

I occasionally have fresh blood along with mucus. But, am still learning as far as what is best for me. I hope that you can find the answers you're looking for on here. In the meantime, we're here if you need support and/or someone to talk to. We also have a new Ulcerative Proctitis Support Group if you'd like to take a look.

Ulcerative Colitis/IBD 1996, Iritis 2001, Ulcerative Proctitis 2013, Indeterminate Colitis 2016, Remission 2017, Hand Eczema

Current Meds:
Pentasa 1000mg 2xday or Mesalamine DR 1.2gm 2xday, Canasa Suppositories (when needed) 1000mg 1xday, Tylenol 3 with codeine 300-30mg (when needed)

600+D Calcium 2xday, Multivitamin, 65mg Iron 1xday, Fish Oil 1000mg, Vitamin D3 5,000 I.U., Eye Drops 2xday

UP Support Group http://www.crohnsforum.com/showthread.php?t=68350

Last edited by Cross-stitch gal; 11-05-2014 at 02:06 AM. Reason: New info
11-07-2014, 08:19 AM   #5
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CDJ's Avatar
Join Date: Jan 2013
Location: Uttoxeter, United Kingdom

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My son who has crohns was diagnoised with Proctitis in his rectum in October after a colonoscopy. His symptoms had been constant toilet visits and stomach pain and generally flaring symptoms. He was given mesaliazine [ Salofalk ] 1g rectal foam to use. This has made a huge difference to him and [ touch wood] seems to be working.

Maybe it would be worth asking your GI to prescibe this and see if this works? Have you tried co codamol for the pain? I hope you find something as I know how bad this came be and how it affected Josh.
Son - -14
diagnosed 29/10/2009

Taken off azathioprine Jan 2011 due to needle phobia
carried on with just pentasa until March 2013

6 weeks Modulen Dec 12 / Jan 13

Finally overcame needle phobia after 3 very long years due to getting right help.

Currently on
125mg Azathioprine
3000mg Pentasa
20g Omeprazole
20mg Buscopan
5mg Prednisolone
600mg ferrous gluconate
250mg zinc
Started Infliximab 18/03/15
11-07-2014, 08:24 AM   #6
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Mattie's Avatar
Join Date: Jun 2013
I have Crohns in my rectum which is generally managed with asacol suppositories. However, during a recent bad patch my consultant recommended a week of metronidazole suppositories, which are an antibiotic, which worked wonders. Now back on the asacol.
11-07-2014, 09:42 AM   #7
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Asacol supps work for me too.But they don't help with the urgency.Loperamide works ok for that.
11-13-2014, 08:35 AM   #8
Jimbo-86's Avatar
Join Date: Nov 2014
Location: West Sussex
Thanks for all your replies. Things are still not great, but i have been put on oral steriods to see if they can help out.
11-13-2014, 12:46 PM   #9
Senior Member
Join Date: Aug 2014
Location: UK
Oh jimbo, poor old you
I had proctitis, and have UC and probably crohns, and was prescribed most of the stuff you mention. However, oral steroids...prednisolone...for nine weeks, were the only thing which worked, and work they did! I hated taking it but it really was a miracle cure for me. I have my fingers firmly crossed it continues.
I hope they do their stuff for you.
Bunty x
11-15-2014, 03:20 PM   #10
Senior Member
Danico85's Avatar
Join Date: Nov 2012
Location: Glasgow
Hi there

I have proctitis down at the tail end aswell and Im able to manage it using salofalk rectal suppositories, I take one most nights and also take 1 or 2 stool softner drinks a day and im also on azathioprine and asacol daily. this seems to manage the symptoms pretty well and if I ever see a drop of bloodin the toilet I used to panic thinking I was having a flair, but once id taken a suppositoriy the blood usually disappeared the next day.

make sure your stool is soft because it makes it much easier to pass instead of the pain of trying to force out dried harder stool.

best of luck mate

11-15-2014, 05:19 PM   #11
Cross-stitch gal
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Join Date: Dec 2011
Location: Vancouver, Washington

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Thanks for the info Danico. Glad you've seemed to find something that works for you!

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