01-23-2015, 11:22 AM   #1
Worried mama
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Worried mama's Avatar
Join Date: Sep 2014

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Remicade Update

So my son had his first infusion yesterday. So far, so good. He's back at school today and I'm hoping he feels ok to get through the day...and his after school activity!

They weighed him and measured at the start of the appt. he gained 1 pound since our last GI visit a month ago and grew 3/4 of an inch! For him, this is great, almost makes me think the Pentasa was starting to work? But, his blood work from yesterday did still show very high inflammation markers, so I'm hoping the remicade will take care of that and he can finally start showing some real growth.

Anyway, just wanted to post this quick update....thanks again to you all for your support and wisdom.
01-23-2015, 11:42 AM   #2
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Sascot's Avatar
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Location: Falkirk, United Kingdom

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Hope the Remicade brings the inflammation down quickly
01-23-2015, 03:27 PM   #3
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Maya142's Avatar
So glad it went smoothly! I hope it works wonders!
Mom of M (20)
diagnosed with Crohn's Disease at 16
Juvenile Idiopathic Arthritis at 12
Juvenile Ankylosing Spondylitis at 16

Mom of S (23)
dx with JIA at 14
Ankylosing Spondylitis at 18
01-23-2015, 09:25 PM   #4
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Join Date: Nov 2012
Location: El paso, Texas

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So glad you are seeing growth and weight gain. Since he had the test before infusion, hopefully remicade is working to bring the inflammation down by now. Let us know how he is doing on his next test.
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
01-25-2015, 05:25 AM   #5
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DustyKat's Avatar
Join Date: May 2010
Location: New South Wales, Australia
So fab to hear about the growth and weight gain!

Sending loads of luck that the Remicade is the icing on the cake and your lad now goes from strength to strength, bless him.

Good Luck!

Dusty. xxx
Mum of 2 kids with Crohn's.
01-26-2015, 03:52 PM   #6
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Mehita's Avatar
Join Date: Nov 2011
Location: Minnesota

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Hoping your next post says you had to go shopping for bigger clothes! DS had a big growth spurt after starting Remi, then it tapered a bit, but took off again at the one year mark.

I hope things continue to go well...
Mom of DS, age 17, dx Crohn's and Celiac Oct 2008
- Remicade, started Nov 2013
- added Methotrexate/Folate March 2016
- Multivitamins, Probiotics, Vit D
- Small bowel resection, Jan 2013
01-26-2015, 05:37 PM   #7
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Farmwife's Avatar
Join Date: Apr 2012
Location: Michigan

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So happy to hear how well it's all going.
I'm mom to............... Little Farm Girl 9 yr old
Ibd (microscopic)
dx Juvenile Arthritis
dx Erthema Nodosum
Bladder and Bowel Dysfunction
Ehlers-Danlos Syndrome dx (1/26/17)
Remicade started on (9/8/14)Every 2 wks
MTX started AGAIN on 11/21/17
EN/EEN- since (1/12/13)
Past Meds- LDN, Humira, Pred, MTX, Sulfasalazine,
01-26-2015, 09:55 PM   #8
Jmrogers4's Avatar
We've had at least an inch of growth at each infusion check in so 6" over a years time, last 8 weeks it was 2". It's just been steady once he took off after about 4 months. Weight came first then height.
Get ready to go shopping.

Mom to Jack (18) dx Crohn's 2/2010
Remicade - started 1/9/14; 7.5ml/kg every 6 weeks
Past meds: Imuran/Azathioprine; allopurinol; methotrexate; LDN; Prednisone; Apriso; Pentasa; EEN

Husband dx Crohn's 3/1993
currently none due to liver issues

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