01-28-2015, 07:31 AM   #1
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Ands's Avatar
Join Date: Aug 2012
Location: Somerset, UK

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Hearing Loss

Over the last couple of months J has been complaining about loosing his hearing it has now got to the point that he can hardly hear a thing, out of either ear. Seen a GP apparently there is a huge build up of fluid behind ear drum in both ears! Was initially given a nasal spray to try but after going back he's now been given a weeks worth of steroids.

I'm afraid I did the whole 'google' thing.... Can hearing loss really be related to Crohns? My GP thought not!

Ands x
.................................................. .............................
Son Joseph diagnosed July 2012 (aged 10)
Crohn's: oesophageal, ileal, oral and perianal disease
6 week exclusive modulen
8 weeks predisolone
2 weeks azathioprine - stopped after reaction
6-MP 50mg - stopped June 2014 (after 18 months)
Currently on:
Sennoside 18ml daily
Multi Vitamin
Omeprazole 10mg
Prochlorperazine 2 x 5mg
Predisolone as a mouth-wash (as and when needed)
01-28-2015, 07:39 AM   #2
my little penguin
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Join Date: Apr 2012

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Can you see an ent ?
They would be best to treat hearing and fluid ear issues ?
I would ask your Gi about the fluid on his ears .
DS - -Crohn's -Stelara -mtx
01-28-2015, 03:13 PM   #3
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Join Date: Jan 2013
Location: North Central, Illinois

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My nonCrohn's son had lots of issues with fluid and it really effected his hearing. I'd say the fluid is a good sign it isn't Crohn's. It is hard to treat and takes 1-3 months to get it to reabsorb! My son's ENT had him doing some exercises like plugging his nose while he drank through a straw. If your son doesn't get better within a month, I'd definitely get him to an ENT. My son finally ended up having his tonsils and adenoids removed.
J's story: http://apathnotchosen.blogspot.com
*J, 18, Crohn's diagnosis 1-2013 (age13), intermittent NG feedings nightly.
Osteoporosis/osteopenia, Scoliosis, EDS, Asthma, Epilepsy, Hla B-27 positive, gluten intolerant, thrombophlebitis, c.diff, depression, anxiety, postural tachycardia/POTS and multiple food allergies.
01-29-2015, 09:34 PM   #4
Join Date: Feb 2014

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Definitely see an ENT. Also, look into a chiropractor if you don't want him on more meds. I know a few people who have used them for their kiddos and ear infections.
01-29-2015, 09:42 PM   #5
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Join Date: Sep 2010
Location: Florida

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I also reccomend an ENT. This problem runs in our family unfortunately. We have dealt with it with one of our kids as well.

Crohn's Dx'ed Sept 08
Allerg Imuran Sept 08
Fail Remicade Jan 09
Methotrex Oct 09-Aug 11
Pentasa stopped - nosebleeds
EENOct 31 - Nov 28th. Too hard!
Retried Remicade Dec 11
Stopped due 2 Anaphylactic Reaction
LDN Jan 2012-June 2014 Got My daughter back!
New secondary diagnosis: Gastroporesis Dec 2013
Lost remission June 2014
Started Entyvio April 2015. Decreased to every 4 weeks October 2015. Praying for remission.
01-30-2015, 06:20 AM   #6
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Join Date: May 2010
Location: New South Wales, Australia
There are some ENT EIMís of IBD, the ear included. This link will load down a PDF:

Ear-nose-throat manifestations in Inflammatory Bowel Diseases

I donít know that what you are describing fits though as it sounds like Otitis Media with effusion. Has your son has any ear infections in the past few months?

I too would recommend seeing an ENT specialist.

Dusty. xxx
Mum of 2 kids with Crohn's.

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