Crohn's Disease Forum » Treatment » Prednisone/Entocort » Taper speeds question

02-04-2015, 01:32 AM   #1
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Taper speeds question

We attempted once again to taper my prednisone now that Im on Imuran AND Humira.
I was on 30-40 mg dosages from June 2014 til now. GI had me initially go from 40 to 30 with a plan to drop 10mg every 7 days.
This did not go well... at all....

Im now back to 35mg a day for the next 3 weeks, and then drop by 5 mg every 21 days.

What speeds have you all seen?

(total side note- the phrase "you are the kind of patient we have to watch very carefully in these situations" is NOT something one wants to hear from ones specialist)
Homeschooling Mom of 2 special needs kids, grad student in special ed. & geek girl.
Dx'ed (June '14) Crohn's colitis w/ possible small bowel involvement, Pyloric Stenosis. Asthma, Multiple allergies, pre-diabetic, unexplained tachycardia, hypertension, restless leg, and pos. ANA, waiting for rheum. referral for possible lupus
Meds: Azathioprine, Methyprednisolone, metoprolol ER, Lomotil, Tramadol, Protonix, flexeril, ropinirole, farxiga, vits D, b12, biotin, fish oil, glucosamine
02-04-2015, 05:05 PM   #2
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My son ended up dropping 5 every 2 weeks. I hope your new plan works. Are you having side effects from the steroids?
02-05-2015, 01:01 AM   #3
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Mine was slow slow slow, kept trying even at 1 mg/2-3 weeks, then .5 mg. Never could get off without flare, so they switched me to Budesonide, which most people take only short term but I've been on 9mg/day for years (as well as Lialda, Remicade, Omeprazole, and other supplements). I've discussed with md, he thinks even long term use is preferable to another resection....

Crohn's Disease Forum » Treatment » Prednisone/Entocort » Taper speeds question
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