Crohn's Disease Forum » Treatment » Entyvio/Vedolizumab » Nervous about Entyvio

03-18-2015, 04:14 PM   #1
Join Date: Jul 2012
Location: Fort Wayne, Indiana
Nervous about Entyvio

I've done both Remicade and Humira. My Dr wants me to move to entyvio but I'm really nervous about the side effects and that it won't work. I'm getting blood and iron infusions due to blood loss. blood tests indicated an increase in inflammation but CT Interography didn't detect any problems. I've been hospitalized several times for blood loS's but they can't find the source. And I've developed secondary symptoms such as joint pain, skin lesions, and brain fog.

Anyone on entyvio who canI provide feedback would be greatly appreciated.
Current Meds:Humira, Entocort, B-12 Injections, Venifur Infusions, Protonix, Zofran, Vicoden, Tramadol, Folic Acid
Multivitamin, Phenegran, Hyoscamine

Meds Tried: Remicade (3 years), Imuran (5 years), Pentasa (5 years), Dyclomine,

Disease: Stricturing Crohn's

Surgeries: 2000 Misdiagnosed for and Surgically removed Appendix. 2001 Fistula and small/Large Bowel Resection.
2008 Small Bowel Resection
2009 Small Bowel Resection
2010 Small Bowel Resecton
03-18-2015, 04:57 PM   #2
Senior Member
FrozenGirl's Avatar
I have heard good things about it. I would recommend checking out the support group, lots of people who have been on it talking about their experiences.
Dx: Ulcerative Colitis, Nov 2013
Currently on:
Mezavant 4.8g
Vitamin D 1000iu
Tecta 40mg
Remicade: 600mg, every 4 weeks
Methotrexate: 15 mg (injection)
03-20-2015, 06:39 AM   #3
Forum Monitor
SupportiveMom's Avatar
Join Date: Mar 2013
Location: Toronto, Ontario

My Support Groups:
I am just adding to concur. The support groups here give more info. I would suggest posting in there and reading through the thread. Since it is a very new med there aren't a lot on it yet. Hopefully as it becomes more available we will get a clearer view of results. My kid is waiting for compassionate grounds request through the hospital to start it. It was just approved a few months ago here in Canada & certainly not approved for kids yet so she should start it by June.
Mom of 16 yr. girl w/Indeter.Colitis Sep. 2012(age 11) Nov.2012 Crohn's Sep. 2014 Crohn's Colitis, UC Nov 2015, Crohn's Feb. 2016

Ileostomy surgery July 2015

Current Meds: None!
Previous Meds: Humira, Remicade, Methotrexate, Cipro, Flagyl, Zofran, Cortifoam, 5-ASA suppository, Questran, Mezavant, EEN (Peptamen Jr. 1.5) by NG tube, Antibiotic Cocktail (Vancomycin, Metronidazole & Doxycycline), Simponi, Prevacid, Imuran, prednisone ☆
12-30-2015, 12:00 AM   #4
Join Date: Dec 2012

My Support Groups:
vz101 did you get the treatment?

01-06-2016, 09:06 PM   #5
Inwe's Avatar
Join Date: Nov 2010
Location: saskatoon, Saskatchewan
Honestly, Entyvio has changed my life. I've tried every Crohn's drug available. 3 years ago I got into the drug trial for Entyvio and I have been in remission every since (for the first time in my life!!). I've had no noticeable side effects either. The only thing I can think of is that I'm really tired after I get my infusion and usually need to have a nap.

This drug is amazing
Currently On:
- Vedolizumab (Trial Drug)
- Sulfasalazine (for Arthritis)
- Sertraline,Vitamin D, Folic Acid, Multi Vitamin, Calcium

Failed Drugs:

- Sulfasalazine, Asacol, Imuran, Remicade, Humira, Methotrexate

01-07-2016, 09:54 PM   #6
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ronroush7's Avatar
Join Date: Oct 2013
Location: vienna, Virginia

My Support Groups:
That is great. Have you had any blood work?

Crohn's Disease Forum » Treatment » Entyvio/Vedolizumab » Nervous about Entyvio
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