I just recently had a colonoscopy and my Crohn's has gotten more severe than it ever has. I have a foot of large intestine left and that is inflamed and my last blockage surgery was in my small intestine, though they also removed some large intestine too, which is now affected with Crohn's and both having erosions throughout, and also ulcers in the stomach. The bathroom problems got worse after my last surgery and doesn't allow much time to make it to the bathroom and the embarrassment of having accidents has become a reality, so I don't go out much and stay home (mainly to be close to the bathroom).
There is a new type of infusion that I am going to start once the flare up gets under control and I'm very hopeful. I'm willing to try anything that will possibly help because I've not had the best luck in the past with medicines starting with Asacol, Remicade (had allergic reactions to that), Methotrexate, Humira, Cimzia, etc. Pain medicines take the edge off but the pain doesn't go away and once the medicines wear off it's right back to where it began, and the doctors around here don't prescribe pain medicines no matter how badly in pain you are. 2013, I think I was at the emergency room more than ever in my life with pains and symptoms that were much worse than normal. Once they put me in the hospital and started running tests, it came back most of my problem was C-diff. I'd never had it before, never even heard of it until then if you can believe that after having Crohn's for so long, and they treated it to which I got better for a short time, then that's when the last blockage came into play.
I'm sorry this post is so long. This is the first support group I've ever joined and it is nice to know I'm not alone with how I feel and things I have to also deal with. I look forward to getting advice on what helps you all and how you cope with the flares and symptoms and also deal with people who can't understand what it is like to deal with the problems that can occur with this disease.
There is a new type of infusion that I am going to start once the flare up gets under control and I'm very hopeful. I'm willing to try anything that will possibly help because I've not had the best luck in the past with medicines starting with Asacol, Remicade (had allergic reactions to that), Methotrexate, Humira, Cimzia, etc. Pain medicines take the edge off but the pain doesn't go away and once the medicines wear off it's right back to where it began, and the doctors around here don't prescribe pain medicines no matter how badly in pain you are. 2013, I think I was at the emergency room more than ever in my life with pains and symptoms that were much worse than normal. Once they put me in the hospital and started running tests, it came back most of my problem was C-diff. I'd never had it before, never even heard of it until then if you can believe that after having Crohn's for so long, and they treated it to which I got better for a short time, then that's when the last blockage came into play.
I'm sorry this post is so long. This is the first support group I've ever joined and it is nice to know I'm not alone with how I feel and things I have to also deal with. I look forward to getting advice on what helps you all and how you cope with the flares and symptoms and also deal with people who can't understand what it is like to deal with the problems that can occur with this disease.