Hi! I am a fellow Chronie nearing 25 years post diagnosis (but I am sure I have had this my whole life).
In August of 1990, I laid in bed in severe pain. Two days later I drove to my parents house and asked if they could take me to the ER. They opened meup expecting a ruptured appendix and found I was going septic from a ruptured ileum. An 18" emergency resection, then 5 weeks in the hospital followed. Went home for about a week and returned with a large abscess and another week in the hospital.
The next ten-ish years went fairly well with a REALLY strict diet and some basic meds. Then a flare and a round of prednisone. Then another ten years of feeling pretty normal and a pretty strict diet and basic meds. The last few years have been a little rough compared to the first 20.
I have had a lot of extra-intestinal manifestations (mostly skin issues, joint pain and spine issues). I have had one fistula that was manged extremely well via a seton.
Generally I consider myself one of the lucky ones. I work full time+ and I enjoy my hobbies and social life. I just want to smooth out some bumps and enjoy some laughter.
I hope I can be of help to some folks.....even when I get in my silly modes!
In August of 1990, I laid in bed in severe pain. Two days later I drove to my parents house and asked if they could take me to the ER. They opened meup expecting a ruptured appendix and found I was going septic from a ruptured ileum. An 18" emergency resection, then 5 weeks in the hospital followed. Went home for about a week and returned with a large abscess and another week in the hospital.
The next ten-ish years went fairly well with a REALLY strict diet and some basic meds. Then a flare and a round of prednisone. Then another ten years of feeling pretty normal and a pretty strict diet and basic meds. The last few years have been a little rough compared to the first 20.
I have had a lot of extra-intestinal manifestations (mostly skin issues, joint pain and spine issues). I have had one fistula that was manged extremely well via a seton.
Generally I consider myself one of the lucky ones. I work full time+ and I enjoy my hobbies and social life. I just want to smooth out some bumps and enjoy some laughter.
I hope I can be of help to some folks.....even when I get in my silly modes!