Hello Everyone. First diagnosed with colon cancer at 50. Went through the surgery and chemo for 52 treatments. Had a good 20 years and then changes started. Was diagnosed with Crohns at 72. Consider myself lucky compared to many. It is the continuous abdominal pain and what to take for it when it becomes 'too' much. I am on Mezavant daily and take Tylenol as needed. What does everyone else do to make it more tolerable. Thank you. Moeli
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I am a newbie
- Thread starter Moeli
- Start date
David
Co-Founder
- Location
- Naples, Florida
Welcome to the community. You shouldn't have to deal with constant abdominal pain. Part of the issue is likely that Mezavant is a pretty weak med. If you're in pain, you're not in remission and your doctor needs to reevaluate you treatment plan.
David. Thank you for your advise. I will discuss with GI at next appointment which is a month away. I feel that is something I have to learn to live with and it comes with the disease. I know of no one else who has it so I am somewhat ignorant so it is good to get help from you all. Thank you
David
Co-Founder
- Location
- Naples, Florida
In my opinion, you should not learn to live with any symptom of this disease. Keep working to get into deep, stable remission and symptom free. For some it's not too hard, for others it is incredibly difficult. But that should be the goal of everyone in my opinion.