I was diagnosed with Crohn's in my middle 30's and have probably had it since my late 20's. At first I thought is was just too much coffee or beer that made my bowels loose and pretty much just avoided them when I needed to feel good. Then I started to get terrible skin rashes on my hands - just my hands and nowhere else.
Five years down the road and my symptoms had been getting worse and worse over time. I started noticing a discharge around my anus and open sores when I would wipe. I would actually pack my butt crack with toilet paper to keep my underwear from getting too soiled. I finally went to a Dr. because I was really grossed out by the whole thing and my wife made me. I was diagnosed with anal fistula. They did a battery of other tests which led to a colonoscopy and finally a diagnosis of Crohn's disease.
Surgery dealt with the fistula and I started on Remicade. Remicade worked pretty well for several years and then my symptoms started to get worse - and worse. We doubled the dose and that worked for a while then it stopped. I had developed an immunity to Remicade. Oh yeah, I also found out that I am allergic to Imuran - two weeks in a hospital on a delaudin drip to treat the pain of pancreatitis while my body disposed of the Imuran. I think I have been hospitalized for at least a week every second year since for one thing an another related to my Crohn's.
On to Cimzia, and that worked pretty good for a bit and until it didn't. So I tried Humira and that worked pretty good until it didn't. Steroids have never worked.
About 7 months ago, I started Helmenthic therapy. That's right. I infested my guts with Hookworm and Whipworm on the theory that they would protect themselves and in doing so settle my symptoms out. That helped a little bit but its too soon to call it a failure. About two months ago, I added CBD - a non psychoactive canniboid - medical marijuana. I live in Washington state so its all legal here. Its too soon to call that a success or failure too.
Anyway, I am running out of options. I feel better but am losing weight and having more control problems. I found this forum looking for recommendations on adult diapers because I have had 5 or 6 major incidents in the last few months and never in the decade before. I've managed to avoid a humiliating situation thus far but the odds are running thin. My only surgical option is a complete removal of my colon and I don't want that.
Sorry if I said too much. I've always had a hard time talking about my disease, even with my wife who is a nurse and deals with Crohn's patients every working day of her life.
Five years down the road and my symptoms had been getting worse and worse over time. I started noticing a discharge around my anus and open sores when I would wipe. I would actually pack my butt crack with toilet paper to keep my underwear from getting too soiled. I finally went to a Dr. because I was really grossed out by the whole thing and my wife made me. I was diagnosed with anal fistula. They did a battery of other tests which led to a colonoscopy and finally a diagnosis of Crohn's disease.
Surgery dealt with the fistula and I started on Remicade. Remicade worked pretty well for several years and then my symptoms started to get worse - and worse. We doubled the dose and that worked for a while then it stopped. I had developed an immunity to Remicade. Oh yeah, I also found out that I am allergic to Imuran - two weeks in a hospital on a delaudin drip to treat the pain of pancreatitis while my body disposed of the Imuran. I think I have been hospitalized for at least a week every second year since for one thing an another related to my Crohn's.
On to Cimzia, and that worked pretty good for a bit and until it didn't. So I tried Humira and that worked pretty good until it didn't. Steroids have never worked.
About 7 months ago, I started Helmenthic therapy. That's right. I infested my guts with Hookworm and Whipworm on the theory that they would protect themselves and in doing so settle my symptoms out. That helped a little bit but its too soon to call it a failure. About two months ago, I added CBD - a non psychoactive canniboid - medical marijuana. I live in Washington state so its all legal here. Its too soon to call that a success or failure too.
Anyway, I am running out of options. I feel better but am losing weight and having more control problems. I found this forum looking for recommendations on adult diapers because I have had 5 or 6 major incidents in the last few months and never in the decade before. I've managed to avoid a humiliating situation thus far but the odds are running thin. My only surgical option is a complete removal of my colon and I don't want that.
Sorry if I said too much. I've always had a hard time talking about my disease, even with my wife who is a nurse and deals with Crohn's patients every working day of her life.