07-11-2015, 01:14 AM   #1
Join Date: Jul 2015
Location: West Roxbury, Massachusetts
My Story

I am 43 have had crohns since I was 22. Been on many meds some have worked some have not A few years back had resection because I had an absess and obstructionI am now on Cimzia .pred. hydrocodone when needed .an antispasmodic, I eat have to go to bathroom immediately I am sore have pan that in n my abdomen near surgery site sometimes travels to my back several bouts of thrush Right now have thrush and pain on nystatin for the thrush Have done many catscans. mris nothing real new going on except.inflammation. going for a colonoscopy soon.Sick and tired of being sick and tired
07-11-2015, 05:56 AM   #2
Forum Monitor
DJW's Avatar
Join Date: Jul 2013
Location: Ontario

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Hi Michelle and welcome.

I'm sorry you've had such a rough battle.
Sending you my support.

Crohn's Disease
DX 1978 (12 yrs old)
Ileostomy at 19

Visit Crohn's and Colitis Canada:

Living in Ontario with no drug benefits?

Trillium Drug Program:

07-11-2015, 07:46 AM   #3
Crohnzie Girl
Senior Member
Crohnzie Girl's Avatar
Join Date: Jun 2013
Location: Carlisle, Pennsylvania

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Same here. Sending you supoort and i hope you find some comfort and remission real soon.
I have been on Asacol, Flagyl, Cipro, 6MP, Remicade, Humira, Cimzia and Azathiaprine. I failed each one of them. I'd be in remission for 6 mths at a time but then it come back full force!

Colostomy since 2013 best thing for me!

Looking for support and sharing stories.
07-11-2015, 05:38 PM   #4
Forum Monitor
Join Date: Dec 2013
Location: London, UK
Sorry to hear about what you're going through. I was diagnosed with Crohn's nearly 20 years ago and I can most definitely relate to the long battle against this disease.

If your scans are showing inflammation then it sounds like you need a dosage change or perhaps to move meds again. Which meds did you try before Cimzia?
Stricturing jejunoileitis dx 1996 aged 17
Current treatment: stem cell transplant
Previous treatment: Humira + methotrexate
Past treatments: prednisolone, azathioprine, budesonide, pentasa, EEN (oral and NG), elimination diet, SCD, whipworms, 6mp, Remicade, anti-MAP antibiotic therapy
Surgeries: small bowel resection and strictureplasties in 2001, 2005, 2009, 2014
07-12-2015, 12:30 AM   #5
Senior Member
Caitlin84's Avatar
Join Date: Jun 2015
Location: Milwaukie, Oregon

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Lately I can very much relate to the sick and tired of being sick and tired. Hang in there.

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