So I've been in my usual high state of anxiety about N's never changing health status and my equally usual misgivings about assessments/recommendations from MD's. Here is the scoop.
A month ago I made an appointment for N to see an adult GI where he goes to college so that he would have someone there in case of an emergency. This doc recommended an small bowel enteroclysis which, after my inquiring about preparations for it, the office said was ordered erroneously and actually wanted a SBFT. I was not sure about doing it so since he soon was to have an appointment with his pedi GI I decided to wait and ask him (he said NO SBFT).
Went to the pedi GI and was pretty firm with him about the lack of progress for N in terms of his weight (still 97 lbs), his fatigue after meals, his general lack of appetite and stomach feeling "bad" after eating..... Aside from this, I mentioned that his WBC count is creeping up. Has always ranged around 3.5-3.7 and has progressively moved up to 5 in the last 2 months. Doc ordered more bloods plus fecal calprotectin which all came back normal and he has a scope scheduled for August 20. Doc thinks it's just IBS and has no recommendations. He said he was not too concerned about his weight or the WBC count.
So basically my questions are:
1) Would not an increasing WBC indicate that he is loosing response to the remicade?
2) Is IBS what is really making him feel bad after eating? He had an MRE a year ago which showed all was ok. And how does one treat IBS?
3) Does he really need a colonscopy? He has not had one since right before his surgery in 2013, but his symptoms have not changed and all his tests have come back normal. (sed rate 9, CRP below assay, calprotectin 62, and his Hct, and RBC are normal for the first time in a long time!) How often is it recommended that they have scopes?
4) What in the world do we do about that new doctor?
N is getting completely fed up with seeing doctors, but he is also completely fed up with feeling poorly.
Thank you for letting me unload!
A month ago I made an appointment for N to see an adult GI where he goes to college so that he would have someone there in case of an emergency. This doc recommended an small bowel enteroclysis which, after my inquiring about preparations for it, the office said was ordered erroneously and actually wanted a SBFT. I was not sure about doing it so since he soon was to have an appointment with his pedi GI I decided to wait and ask him (he said NO SBFT).
Went to the pedi GI and was pretty firm with him about the lack of progress for N in terms of his weight (still 97 lbs), his fatigue after meals, his general lack of appetite and stomach feeling "bad" after eating..... Aside from this, I mentioned that his WBC count is creeping up. Has always ranged around 3.5-3.7 and has progressively moved up to 5 in the last 2 months. Doc ordered more bloods plus fecal calprotectin which all came back normal and he has a scope scheduled for August 20. Doc thinks it's just IBS and has no recommendations. He said he was not too concerned about his weight or the WBC count.
So basically my questions are:
1) Would not an increasing WBC indicate that he is loosing response to the remicade?
2) Is IBS what is really making him feel bad after eating? He had an MRE a year ago which showed all was ok. And how does one treat IBS?
3) Does he really need a colonscopy? He has not had one since right before his surgery in 2013, but his symptoms have not changed and all his tests have come back normal. (sed rate 9, CRP below assay, calprotectin 62, and his Hct, and RBC are normal for the first time in a long time!) How often is it recommended that they have scopes?
4) What in the world do we do about that new doctor?
N is getting completely fed up with seeing doctors, but he is also completely fed up with feeling poorly.
Thank you for letting me unload!