Crohn's Disease Forum » Your Story » Help needed

08-22-2015, 02:11 PM   #1
Join Date: Aug 2015
Help needed

Hi all.

First time on here, looking for some help, I'm five months post surgery with an end ileostomy dur to crohns and intestinal tb. Things have been good after the initial settling in period, the problem I have is that because I'm so narrow there isn't a lot of space between my Stoma and belly button, so my flange goes over my belly button and as soon as I move around or bend I'm getting a void an the flange is coming in stuck the whole flange coming away from skin.

I can't use extra tape as I'm allergic, I've tried different bags, Welland, dasnsac and Hollister, the Hollister was the best, the flangecwad perfect and very sticky but the velcro pening kept coming undone!

I'm looking for a one piece soft convex drainable bag with a different shaped flange maybe diamond it butterfly that will be pass my belly button.

Any one have any suggestions.

Thanks for reading.
08-22-2015, 03:06 PM   #2
Forum Monitor
Join Date: Nov 2012
Location: El paso, Texas

My Support Groups:
Hello. I don't have an answer for you but I want to welcome you. We have the Surgery forum and Stoma sub-forum. You may want to post your question there. I am sure some one will help.
Mom/ Girl 19
dx 2011 crohn's in terminal ileum, peri-anal
Prior Meds Asacol, Prednisone, nexium
Current meds.
Remicade since Nov. 2012
5000 Vit. D, Multi-Vitamins with Iron
Currently in REMISSION :dance

Mom/ 16 boy
Amplified musculoskeletal pain
Prior. Prednisone, sulfasadine,
Currently. Celebrex, gabapentin, amitriptyline.
08-22-2015, 05:58 PM   #3
David's Avatar
Join Date: Feb 2006
Location: Naples, Florida
Welcome to the community. I agree with araceli, post your question in our stoma forum as they're the experts on this one
It's good to be back

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