Ok so my 5 month (probably much longer tbh) acute period of flare has continued to yield no definite diagnosis. Not that this should be something I'm unhappy about. However I still continue to emit symptons that are not only consistent with CD's they are unsettling for me as I still don't know what's going on. Have been tested for TB, HIV (which was never a doubt) Cancer and nothing untoward. I keep pushing for IBS but Doctors have flatly refused to diagnose because of the following;
5 perineal abscesses, 3 fistulas (2 still with drainage setons) 7 hospital visits, tissue necrosis, abdominal pain, fatigue, general malaise, joint and muscle ache, referred inflammation, change of BM (but no Bristol Scale 7's but plenty of 5 & 6 with increased volume) abnormal biopsies (but no granulomas, just abnormal crypts), bleeding from rectum, loss of appetite and overall weight loss. 10-15kg in 6 weeks without trying. (I'm a 183cm 38 year old male who is normally around 85kg.)
Last visit to surgery on Friday still show no signs of inflammation via a Sigmoidoscopy. I have had another biopsy (or two) and now await further results.
In my mind I have a few things going for me:
Age (too old to be diagnosed with CD - although when I think about things in the past I do worry and connect previous 'issues'.
No diarrhoea
No Granulomas (yet)
No family history of IBD
With the above, am I in the clear and is this something else? Anyone have any experience, idea or general knowledge to share?
I'm desperate to find an answer and move on. This is so frustrating. Not to mention painful when I eat, but touch wood I'm feeling pretty good right now.
Thanks.
5 perineal abscesses, 3 fistulas (2 still with drainage setons) 7 hospital visits, tissue necrosis, abdominal pain, fatigue, general malaise, joint and muscle ache, referred inflammation, change of BM (but no Bristol Scale 7's but plenty of 5 & 6 with increased volume) abnormal biopsies (but no granulomas, just abnormal crypts), bleeding from rectum, loss of appetite and overall weight loss. 10-15kg in 6 weeks without trying. (I'm a 183cm 38 year old male who is normally around 85kg.)
Last visit to surgery on Friday still show no signs of inflammation via a Sigmoidoscopy. I have had another biopsy (or two) and now await further results.
In my mind I have a few things going for me:
Age (too old to be diagnosed with CD - although when I think about things in the past I do worry and connect previous 'issues'.
No diarrhoea
No Granulomas (yet)
No family history of IBD
With the above, am I in the clear and is this something else? Anyone have any experience, idea or general knowledge to share?
I'm desperate to find an answer and move on. This is so frustrating. Not to mention painful when I eat, but touch wood I'm feeling pretty good right now.
Thanks.